[BEGLET]

Just saw a new neuro today - even an hour consult and she was overwhemled with all the health issues I have - but is the first doc since I had it done six years ago who carefully read my sural nerve biopsy (that doc told me told move into nursing home at 43 - I said "bye").... she just kept repeating "this is bad" while reading the biospy results, and asked for me to come back in a month after her vacation and also I send her specfic tests shes has asked for... I've had several diagnosis in the past - Post Viral PolyNueropathy with Chrnonic Fatique - Amyloidosis (positive and nagative biopsies so they contintinue to bioppy for it whenever doing an invasive procedure) -HSANII (heriditary) and CIPD... she wants to see auto-immune markers which have not been there... therefore tired and sore but at least someone who thinks I have not have a real good look at my entire history and is going to do this....

Anyway, looks like she might make an effort - in the mean time I'm desparately trying to beat the gastroparesis - which is getting worse and I'm dissapearing - they have put me on mostly broth and protein powder and hoping that will add some weight and avoid J-tube.... (which my GI doc does not want to do).... and going to get back shots for pain there - pain doc is real nervous because of previous drug reactions but gotta try it - and next week they are looking at bladder-kidney issues!

Other then that -just fine But I'm fighting ..... and have to just learn to rest more between all these....

Thats the scoop - maybe I an get to the bottom of a mystery here?