I also have a hard time with muscle spasms and, like you, DejaVu, they are worsened with movement.

I get the spasms in my legs, hips, and glutes. Sometimes, when they get really bad, they feel like elastics that are being snapped really hard.

I particularly have a hard time with these at nights. Some nights, it gets so bad that I don't sleep much at all and eventually have to get up and move around to settle them down. But then, as a result, I get a deep burning pain in my hamstring/glute area, accompanied by extremely hot and red feet (which eventually become icy cold, blue and painful), sharp pains in my hips, hamstrings, and glutes, a sensation of cool yet burning water trickling down my muscles, and a sense of weakness with difficulty moving around.

Do these other symptoms sound familiar to anyone?

Sure hope you all find a way to calm the spasms down. I am trying to eat more bananas (for the potassium) and almonds for magnesium.

I take 400 mg. of mag. citrate, twice a day. Most people don't get enough. Good for so many reasons.

[QUOTE=Diana Dilley;610601]
I have complete and severe muscle cramps as well. I have described this to my neurologist and to the Genetics doctor I met; and, both say that this is not typical with PN. I have been diagnosed with Charcot Marie Tooth, Type 1A. This is a genetic type of neuropathy.

I have been complaining about severe and sudden muscles cramps for about 8 years now. I was actually diagnosed with CMT after a particularly bad bout of muscle cramps. It's what convinced my family doctor to refer me to a neurologist. We had already gone over my diet, blood oxygenation and blood work repeatedly; and all seemed normal.

I don't know if these cramps are due to the neuropathy, or if it just so happens to be something else and we just happened to find the neuropathy first. I must admit that I have far more difficutly dealing with the cramps than the CMT symptoms. I dread them. I scare my family when I get them.


Hi Diana, The muscle cramping is more than likely due to your CMT. Most of us have it but some much more severe than others.

CMT affects your nerves/muscles in your hands, feet, legs, forearm, fingers, toes, etc. Many other parts of your body as well - many abnormalities. So there will be muscle cramping, etc. Just something to think about.