NeuroTalk Support Groups - small fiber sensory neuropathy

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NeuroTalk Support Groups (https://www.neurotalk.org/)

- Peripheral Neuropathy (https://www.neurotalk.org/peripheral-neuropathy/)

- - small fiber sensory neuropathy (https://www.neurotalk.org/peripheral-neuropathy/43420-fiber-sensory-neuropathy.html)

mrsD	04-15-2008 10:52 AM

I just put up some

magnet info today, on the Mayo disappointment thread.

Brian

04-15-2008 02:13 PM

Quote:

Originally Posted by HeyJoe (Post 258880)

Brian i know you have posted about the magnets that you use, but could you please post them again. Its for my wifes leg actually. Thanks.

Sure Joe, i will send you a PM.

Leslie

07-30-2008 08:56 PM

Use of Magents and Patches

Quote:

Originally Posted by Brian (Post 258699)

Seems like a few of us here with spine problems, mines c5 c6 c7 , it is inoperable
apparently a neuro surgeon said, if i want instant relief i get either the old chinese accupunture or lazor accupunture, otherwise i get by on very strong magnets.

Brian - do you use the magnets for PN or another ailment? I've read all the posts (I think) and I couldn't find anything about what strength, placement, where you get them, etc. Do you mind elaborating? If you use them for relief with PN I would like to give them a try.

Can anyone give me advise on the patches?

I am trying the Solanpos patches and I am having trouble finding the right placement. I viewed the anatomy website suggest by mrsD but I'm still not getting to the trouble spots. Can anyone make and suggestion, and also, how do you keep the darn things on, they keep coming unstruck...

Thanks in advance...

MyFeetHurt

11-07-2011 04:43 PM

Small Fiber Sensory Neuropathy

Anyone else have it in their feet and legs?
Alan in Hawaii

amit	11-08-2011 12:39 AM

sfsn

I have it all over my body.

Idiopathic PN

03-07-2012 09:14 PM

Quote:

Originally Posted by mrsD (Post 257476)

It requires B6 and folate + essential fatty acids. All of these are needed for
repair.

This is explained in Craig Cooney's book:
http://www.amazon.com/Methyl-Magic-M...8092464&sr=8-1
Methyl Magic
There is a whole chapter on this subject there.

Hi Mrs. D,
I am taking multivitamin with Vit.B6 2mg and Folic Acid 400mg (accg to the label, its 100% of the daily required value). I also take Omega 3,6,9. Are these enough to complement the VitB12 5000mcg I am taking now?

I used to take Vit6 separately but my neurologist during my initial visits advised me to stop it because it could aggravate my symptoms.

As always, thank you. By the way, I am scheduled for a skin biopsy at Shands Hospital (Jacksonville). I pray that there will be some good news.... Sometimes, when the pain is too much, its difficult to be hopeful.

ger715

03-07-2012 11:20 PM

Yes Alan,

Quote:

Originally Posted by MyFeetHurt (Post 822611)

Anyone else have it in their feet and legs?
Alan in Hawaii

although I have had spinal fusion/laminectomy and still experience spine pain; the legs, ankles and feet are the worst. The legs are quite painful and heavy, making walking difficult. But....the burning in the ankles and feet, at times is almost unbearble. I do take narcotic meds, but still experience quite a bit of pain. Daily average on a scale 0 -10, is about 6-7 going at times to a 9-10.

(Ger)

mrsD	03-07-2012 11:21 PM

That may be enough for most people.

However if you have the polymorphism of damaged methylation,
folic acid won't work. You would need the methylfolate (Metafolin).m (MTHFR polymorphism is the name)

Only DNA testing can show if you are in the 10-30% who cannot methylate folic acid (which is the synthetic inactive form).

Idiopathic PN

03-19-2012 07:55 PM

Quote:

Originally Posted by ann-elizabeth (Post 257182)

Hello,

I have been dx'd with small fiber sensory neuropathy. You may remember some of my past posts. The initial nerve conduction test showed that I had axonal damage...not myelin sheath.

Given this dx, what are my chances of recovery? Can axonal damage be reversed? I think the answer is no, but I want to be sure. I am currently taking a slew of vitamins/supplements are recommended by people here. I also take Nuerontin (900 mgs a day). I have stopped taking the Topamax.

My goal is to eat better, exercise more and eventually go off all prescriptions. I want to heal my body, not put more chemicals in it. Is this possible? Has anyone gotten better with the diagnosis? All the major culprits in causing the PN have been ruled out.

Thanks

Ann

Hi Ann Elizabeth,

How are you? If you dont mind sharing us your current condition. I really would like to know how the supplements help you.

Thank you.

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