HI there: I'm new to this forum, but have learned alot about PN already. I was diagnosed with idiopathic simple fibre neuropathy about a month ago. I have pins and needles, which become a burning in my feet pretty much all day long, along with some pins and needles in my hands. But the past few weeks, I've started having a pressure feeling on my bladder--no incontinence, just a "have to go" feeling. I also started having a strained feeling in one eye, with no vision problems. Does anyone else have any of these symptoms with their PN? I find it all very scary, as until a few months ago I was a very active grandmother (mid fifties). Any help and encouragement would be appreciated! Thanks.

I was interested to hear of your spinal situation. I have had my spine fused (many years ago) and was wondering if my diagnosis of PN was correct, or if this is really all from my spine, since I've been told I have some stenosis and 2 bulging discs. I guess the symptoms can be quite the same. I'm waiting for an appointment with either a neurosurgeon or orthopaedics person--whichever my doctor decides.

diagnosed with peripheral neuropathy
 

I was diagnosed with peripheral neuropathy about a year ago sent out the door without any advice.My nights are a nightmare from dusk till dawn.The pain is an 8 of a scale of 1-10 burning pain that makes my feet feet like they are in a vice.They are sensitive to touch.just putting on a moisteriser hurts so muchMy balance isnt the best.

I dont know what to do or how to handle this.I fall asleep from exhaustion of crying .but I have had enough.

.I want to find ways to deal with this.I have disc degeneration also and a hip spur also type 11 diabetis on insulin and tablets

but with all of this .... I do have a sense of humour:winky:

Sallyanne,

I completely understand what you are going through. I too have trmendously painful PN. Walking is a chore and very painful. My life has been turned upside down. I will say that in order to sleep and help take the edge off the pain I use Medical Cannabis. I have found it to be the only method for taking the pain level down to a manageable level so I can sleep. I still wake at night but the pain is not that bad.

During the day at work I have yet to find anything to help ease the pain. I cannot take any type of pain meds as I need my head 100% clear. I am a computer systems engineer and a small mistake could cost my customers millions of dollars. So I just deal with the pain during the day. When evening comes I am wiped out both mentally, emotionally, and physically. I have created a healing/relaxation space in my house that helps me to relax and help things calm down.

I wish I could recommend some other things but I have nothing else. Hang in there. Look to family and friends for emotional support. God Bless!!!

Dewey

So the pain is because your nerves are still healing and not because your brain starts receiving pain signals for the rest of your life, right? Pain is propotional to the healing of your nerves

Frightened but perhaps hopeful
 

Hello folks.

I am encouraged by your posts, but am still struggling with fear and anxiety.

I am experiencing severe and burning throat/neck pain along my clavical, trapezius/scm and under/around adams apple on that same side. Also, pain behind my head on that side and tingling/paresthesia in my left hand.

I hope I have not permanently damaged muscles or nerves in my throat somehow...a very frightful prospect to be sure. (and I know anxiety makes it worse.)

Any help, ideas, or encouragement is much appreciated, and I can honestly say I feel your pain. :)

Your symptoms sound like they could be stress related. Perhaps your doctor can prescribe something to help with your anxiety while you learn other methods to de-stress to the point that you no longer need the medication.

Some suggestions are exercise, muscle relaxation exercises, yoga, massage therapy, acupuncture, and prayer if you are religious. Find someone to talk to that you trust that may be able to help you see things differently and provide helpful advice and support.

Best wishes.....

Seems I have been talking to the wrong people . My doctor is telling me that lyrica is the best he can come up with , along with 60 mgs of morphine 3 times a day . I have been led to believe that lyrica is the best there is out there that helps neuropathy . But I have to tell ya , I have had neuropathy from the knee down to my toes for 5 years now . When I lay down the pain worsens by 100 fold . As long as I fall asleep in the first 10 mins I lay down the pain doesnt bother me until the meds wear off and I start feeling the pain . Oh yeah I take amitriptylene for sleep. I have not been seeing a neurologist so this may not be a good mix of drugs to help my pain . But occasionally I am pain free with just the feeling I am walking on baloons(pretty much all the time) . But the pain meds dont last as long as they are supposed to . So to get around it I am supposed to take 300 mgs of lyrica twice a day and 60 mgs of extended release morphine a day , well to make it last and be more efficient I take 150mg of lyrica 3 xs a day and 30 mg of morphine 3 xs a day . This often times leaves me in pain but still I get more relief that way . Grouchyness is a huge problem for me because my wife works alot to pay the bills and my kids are all 17 and older and just dont hang out with me much . So much of the time I am alone and in pain . I guess besides the pain loneliness is my biggest problem . I know I am depressed but just dont want back on the brain drugs , they really make it worse for me . Onlly one of those that worked made me hateful and mean and that was Wellbutrin . I have heard there is a surgery called nerve decompression that can cure neuropathy but my doctor doesnt know anything about it . I have read that only 200 doctors in the U.S. know the procedure and it takes a couple of cuts in various places along the spine neck and feet . Back to the meds , I am almost certain that gabbapintin is part of the cause of my neuropathy . Long story behind that but just wanted to see if anyone else might have the same conclusions . I honestly think the doctors treat the symptom and not the disease these days . Thanks for letting me vent a little and thank you listening folks . It does help to talk to people who understand this nonstop pain we live with .

Grateful for the conversation the understanding

Dhreg

Care to elaborate....?
 

"I am almost certain that gabbapintin is part of the cause of my neuropathy"

I just started taking Gabapentin yesterday and would be very interested in hearing why you think it caused your neuropathy?

Thanks....!