Neuropathy does improve

diagnonsense · 06-08-2009, 06:27 PM

My neurologist laughed at me when I told her that a doctor suggested my nerves may heal. (a doctor had)

She said no, if I am lucky I will not get worse. Oh what a glass 1/2 empty person she is.

faithful · 07-08-2009, 04:28 PM

Quote:

Originally Posted by LizaJane

My neuropathy began in 1996. By 1999 I had two abnormal EMGs. I think had a bunch of other abnormals. I went to Mayo and had more abnormals.

Today I had an EMG as preparation for spinal surgery and the sensory nerves were normal. I haven't gotten the final report, but he neurologist who did the test said all nerves were normal, except my peroneal, which have never been normal. I do have a new L5 radiculopathy with denervation of the L5 muscles on the left, but it's not new enough to be causing my pain. (that's from the spine)

After seeing the results, one of the neuros said: That means the original diagnosis was wrong, and you never had neuropathy!

Yah, right. I told them I had learned how to care for it--the secret is feeding the mitochondria needed to grow axons (CoQ10, acetyl L carnitine) and taking antioxidants to keep inflammation from causing harm. In addition, keep using the muscles, whether you feel them or not. That was the secret I learned on this forum.

And really, my symptoms are so small compared to 10 years ago. Yes, they're not gone, but they are not that significant.

It can be done. If you've got an idiopathic small fiber neuropathy, or long fiber, and don't have an ongoing CIDP or Sjogren's picture, your peripheral nerves can heal.

Thanks for your contribution. Could you be a little more specific about the supplements you are or were taking and the dosages. My Dr.'s just want to give me heavy drugs to deal with my neuropathy. Any suggestions would be so helpful. I sure hope you still check your messages here once in a while.Thanks,
Faithful

echoes long ago · 07-08-2009, 08:37 PM

Several people here have found that as their nerves were healing the pain actually became worse for a while. The pain also may feel the same as when the pain when the nerves were first being damaged...in your case burning. The fact that your feet are less numb and the other pain has diminshed the burning may actually be a good sign. Only time will tell if you continue to take the supplements.

Stickynote · 07-22-2009, 09:13 AM

I have been suffering with this dam neuropathy for 5 years now , and it is getting worse. Nice to read some stories of hope. The pain and burning has now moved into my hands and scrotum as well even with tight glucose control. It is becoming all consuming. My Dr's say this is nothing left to try, and that basically there is no hope. This is my first attempt to reach out and talk with others who suffer as I do. Not sure what else to say. Hope this post finds you all well and maybe haveing a tolerable day.

JFYMAT · 07-23-2009, 05:26 AM

Hi I suffer from this terrible condition too. Mine is on the left side of my face , but also affects my left temple. I take no drugs for it, only supplements and physical activity. I have had this 5 years now with no end in sight. I cant drink or smoke anymore because my pain gets incredibly worse if I do. I am getting some relief this week though. I dont know why, but I have had short periods of relief. My pain is usually constant, so I know when it feels better. You need to keep researching the internet and sites like this. There is a product called NEUROPATHY SOLUTIONS. that may help you. I will try and get the number for you or just type those two words on google and that should pull up their website. Best wishes JEFF

aeb105 · 11-25-2009, 10:53 AM

Try either 2-3 cloves raw garlic everyday(can crush and put in sandwich is good) or take Allibiotic with your other regimen. I think you need a solid antibacterial. I do this as well and my symptoms have improved big time.

aeb105 · 11-25-2009, 11:10 AM

Sorry that went to the wrong place. I was affirming what Liza said about taking an antibiotic of some sort. I feel the same way. I feel 5 times better now that I take this everyday. If you don't want to eat raw garlic, you can take Allibiotic(contains garlics's Allicin). Garlic by the way is nature's most powerful antibiotic and it leaves the good bacteria in your gut and doesn't cause Guillian Bar Syndrome, unlike pharma antibiotics.

Hurtin' Nerves · 08-02-2009, 08:11 AM

WHERE DO I FIND THESE STICKIES?

It has been said that at the beginning of this thread, there are THREE stickies posted at the top of the page, containing supplementation advise for PN.

I go to the beginning of this thread and see NO such stickies, just postings. On page two of this thread there is a supplementation list given but not by WINGS ... by Liza Jane. Yet I hear references to a "sticky" by WINGS and yet cannot find it ... or by Ms. D...where is that one?

A link to these stickies, please? EXACT LOCATION ... are they on this thread or a different thread ? IF on this thread, what page number, how many posts down, by who??? I just do not find these "stickies" and they sound very important to help me and many...but what good are they SINCE I and many others do not seem able to find them??

--Hurtin' Nerves

Chemar · 08-02-2009, 09:02 AM

Hi and welcome

"sticky" threads are ones that are pinned to the top of the forum

so if you are looking at the forum main page, you will see the "sticky" threads at the top
http://neurotalk.psychcentral.com/forum20.html

you have posted this on one of them...LizaJane's "sticky" thread

A thread is an series of posts on a specific topic while the forum is comprised of many threads and pages

hope that helps

DanP · 08-02-2009, 02:22 PM

Click here: http://neurotalk.psychcentral.com/thread177.html ... (it's the fourth thread down from the top titled: Important Links/stickies ) and you will see several posts that contain lots of PN info and reference materiel by Bobbi, Glennta, MrsD, and Wing42. These 4 folks have listed lots of sites that will give you plenty of informtion. Check it out.

DanP

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