advertisement
Reply
 
Thread Tools Display Modes
Old 11-24-2009, 07:33 PM #1
aeb105's Avatar
aeb105 aeb105 is offline
Member
 
Join Date: Nov 2009
Posts: 110
10 yr Member
aeb105 aeb105 is offline
Member
aeb105's Avatar
 
Join Date: Nov 2009
Posts: 110
10 yr Member
Default

Quote:
Originally Posted by mrsD View Post
aeb105,
did you have this treatment?
No, I have not done the TENS Laser. But I have done the laser blood irradiation on my own. I purchased a couple of 650nm 1mw laser diodes, you can place them on an artery or stick them up your nose 20-60 minutes up to 3 times a week. I feel in perfect health after a session. The other more powerful caliber 850nm-935nm for neural healing is the stuff I am really interested in as well. I will be back later tonight and tell you more. I have seen many positive rat studies on damaged spinal nerves.

*edit*

added by Chemar
for more on this topic please see http://neurotalk.psychcentral.com/thread108998.html

Last edited by Chemar; 11-24-2009 at 10:11 PM. Reason: copyright. also broken links. redirecting to new thread
aeb105 is offline   Reply With QuoteReply With Quote
Old 12-06-2009, 02:38 PM #2
octavia octavia is offline
New Member
 
Join Date: Dec 2009
Posts: 2
10 yr Member
octavia octavia is offline
New Member
 
Join Date: Dec 2009
Posts: 2
10 yr Member
Default

I was interested to hear of your spinal situation. I have had my spine fused (many years ago) and was wondering if my diagnosis of PN was correct, or if this is really all from my spine, since I've been told I have some stenosis and 2 bulging discs. I guess the symptoms can be quite the same. I'm waiting for an appointment with either a neurosurgeon or orthopaedics person--whichever my doctor decides.
octavia is offline   Reply With QuoteReply With Quote
Old 12-08-2009, 04:05 AM #3
sallyanne18 sallyanne18 is offline
New Member
 
Join Date: Dec 2009
Posts: 3
10 yr Member
sallyanne18 sallyanne18 is offline
New Member
 
Join Date: Dec 2009
Posts: 3
10 yr Member
Default diagnosed with peripheral neuropathy

I was diagnosed with peripheral neuropathy about a year ago sent out the door without any advice.My nights are a nightmare from dusk till dawn.The pain is an 8 of a scale of 1-10 burning pain that makes my feet feet like they are in a vice.They are sensitive to touch.just putting on a moisteriser hurts so muchMy balance isnt the best.

I dont know what to do or how to handle this.I fall asleep from exhaustion of crying .but I have had enough.

.I want to find ways to deal with this.I have disc degeneration also and a hip spur also type 11 diabetis on insulin and tablets

but with all of this .... I do have a sense of humour
sallyanne18 is offline   Reply With QuoteReply With Quote
Old 12-11-2009, 10:58 AM #4
NM_Dewey NM_Dewey is offline
Junior Member
 
Join Date: Nov 2009
Location: Belen, NM
Posts: 39
10 yr Member
NM_Dewey NM_Dewey is offline
Junior Member
 
Join Date: Nov 2009
Location: Belen, NM
Posts: 39
10 yr Member
Default

Sallyanne,

I completely understand what you are going through. I too have trmendously painful PN. Walking is a chore and very painful. My life has been turned upside down. I will say that in order to sleep and help take the edge off the pain I use Medical Cannabis. I have found it to be the only method for taking the pain level down to a manageable level so I can sleep. I still wake at night but the pain is not that bad.

During the day at work I have yet to find anything to help ease the pain. I cannot take any type of pain meds as I need my head 100% clear. I am a computer systems engineer and a small mistake could cost my customers millions of dollars. So I just deal with the pain during the day. When evening comes I am wiped out both mentally, emotionally, and physically. I have created a healing/relaxation space in my house that helps me to relax and help things calm down.

I wish I could recommend some other things but I have nothing else. Hang in there. Look to family and friends for emotional support. God Bless!!!

Dewey

Quote:
Originally Posted by sallyanne18 View Post
I was diagnosed with peripheral neuropathy about a year ago sent out the door without any advice.My nights are a nightmare from dusk till dawn.The pain is an 8 of a scale of 1-10 burning pain that makes my feet feet like they are in a vice.They are sensitive to touch.just putting on a moisteriser hurts so muchMy balance isnt the best.

I dont know what to do or how to handle this.I fall asleep from exhaustion of crying .but I have had enough.

.I want to find ways to deal with this.I have disc degeneration also and a hip spur also type 11 diabetis on insulin and tablets

but with all of this .... I do have a sense of humour
__________________
"An American Military member, whether active duty, retired, national guard or reserve, is someone who, at one point in his life, wrote a blank check made payable to " The United States of America", for an amount of "up to and including my life.""
NM_Dewey is offline   Reply With QuoteReply With Quote
Old 12-13-2009, 04:42 PM #5
filipe filipe is offline
---
 
Join Date: Dec 2009
Posts: 141
10 yr Member
filipe filipe is offline
---
 
Join Date: Dec 2009
Posts: 141
10 yr Member
Default

So the pain is because your nerves are still healing and not because your brain starts receiving pain signals for the rest of your life, right? Pain is propotional to the healing of your nerves
filipe is offline   Reply With QuoteReply With Quote
Old 12-13-2009, 10:50 PM #6
Dionysius252 Dionysius252 is offline
Junior Member
 
Join Date: Dec 2009
Posts: 9
10 yr Member
Dionysius252 Dionysius252 is offline
Junior Member
 
Join Date: Dec 2009
Posts: 9
10 yr Member
Default Frightened but perhaps hopeful

Hello folks.

I am encouraged by your posts, but am still struggling with fear and anxiety.

I am experiencing severe and burning throat/neck pain along my clavical, trapezius/scm and under/around adams apple on that same side. Also, pain behind my head on that side and tingling/paresthesia in my left hand.

I hope I have not permanently damaged muscles or nerves in my throat somehow...a very frightful prospect to be sure. (and I know anxiety makes it worse.)

Any help, ideas, or encouragement is much appreciated, and I can honestly say I feel your pain.
Dionysius252 is offline   Reply With QuoteReply With Quote
Old 12-26-2009, 09:08 AM #7
Starglow Starglow is offline
Junior Member
 
Join Date: Dec 2009
Location: North Carolina
Posts: 13
10 yr Member
Starglow Starglow is offline
Junior Member
 
Join Date: Dec 2009
Location: North Carolina
Posts: 13
10 yr Member
Default

Quote:
Originally Posted by Dionysius252 View Post
Hello folks.

I am encouraged by your posts, but am still struggling with fear and anxiety.

I am experiencing severe and burning throat/neck pain along my clavical, trapezius/scm and under/around adams apple on that same side. Also, pain behind my head on that side and tingling/paresthesia in my left hand.

I hope I have not permanently damaged muscles or nerves in my throat somehow...a very frightful prospect to be sure. (and I know anxiety makes it worse.)

Any help, ideas, or encouragement is much appreciated, and I can honestly say I feel your pain.
Your symptoms sound like they could be stress related. Perhaps your doctor can prescribe something to help with your anxiety while you learn other methods to de-stress to the point that you no longer need the medication.

Some suggestions are exercise, muscle relaxation exercises, yoga, massage therapy, acupuncture, and prayer if you are religious. Find someone to talk to that you trust that may be able to help you see things differently and provide helpful advice and support.

Best wishes.....
Starglow is offline   Reply With QuoteReply With Quote
Old 12-27-2009, 09:47 AM #8
Dhreg Dhreg is offline
New Member
 
Join Date: Dec 2009
Posts: 3
10 yr Member
Dhreg Dhreg is offline
New Member
 
Join Date: Dec 2009
Posts: 3
10 yr Member
Default

Quote:
Originally Posted by LizaJane View Post
My neuropathy began in 1996. By 1999 I had two abnormal EMGs. I think had a bunch of other abnormals. I went to Mayo and had more abnormals.

Today I had an EMG as preparation for spinal surgery and the sensory nerves were normal. I haven't gotten the final report, but he neurologist who did the test said all nerves were normal, except my peroneal, which have never been normal. I do have a new L5 radiculopathy with denervation of the L5 muscles on the left, but it's not new enough to be causing my pain. (that's from the spine)

After seeing the results, one of the neuros said: That means the original diagnosis was wrong, and you never had neuropathy!

Yah, right. I told them I had learned how to care for it--the secret is feeding the mitochondria needed to grow axons (CoQ10, acetyl L carnitine) and taking antioxidants to keep inflammation from causing harm. In addition, keep using the muscles, whether you feel them or not. That was the secret I learned on this forum.

And really, my symptoms are so small compared to 10 years ago. Yes, they're not gone, but they are not that significant.

It can be done. If you've got an idiopathic small fiber neuropathy, or long fiber, and don't have an ongoing CIDP or Sjogren's picture, your peripheral nerves can heal.
Seems I have been talking to the wrong people . My doctor is telling me that lyrica is the best he can come up with , along with 60 mgs of morphine 3 times a day . I have been led to believe that lyrica is the best there is out there that helps neuropathy . But I have to tell ya , I have had neuropathy from the knee down to my toes for 5 years now . When I lay down the pain worsens by 100 fold . As long as I fall asleep in the first 10 mins I lay down the pain doesnt bother me until the meds wear off and I start feeling the pain . Oh yeah I take amitriptylene for sleep. I have not been seeing a neurologist so this may not be a good mix of drugs to help my pain . But occasionally I am pain free with just the feeling I am walking on baloons(pretty much all the time) . But the pain meds dont last as long as they are supposed to . So to get around it I am supposed to take 300 mgs of lyrica twice a day and 60 mgs of extended release morphine a day , well to make it last and be more efficient I take 150mg of lyrica 3 xs a day and 30 mg of morphine 3 xs a day . This often times leaves me in pain but still I get more relief that way . Grouchyness is a huge problem for me because my wife works alot to pay the bills and my kids are all 17 and older and just dont hang out with me much . So much of the time I am alone and in pain . I guess besides the pain loneliness is my biggest problem . I know I am depressed but just dont want back on the brain drugs , they really make it worse for me . Onlly one of those that worked made me hateful and mean and that was Wellbutrin . I have heard there is a surgery called nerve decompression that can cure neuropathy but my doctor doesnt know anything about it . I have read that only 200 doctors in the U.S. know the procedure and it takes a couple of cuts in various places along the spine neck and feet . Back to the meds , I am almost certain that gabbapintin is part of the cause of my neuropathy . Long story behind that but just wanted to see if anyone else might have the same conclusions . I honestly think the doctors treat the symptom and not the disease these days . Thanks for letting me vent a little and thank you listening folks . It does help to talk to people who understand this nonstop pain we live with .

Grateful for the conversation the understanding

Dhreg
Dhreg is offline   Reply With QuoteReply With Quote
Old 12-29-2009, 07:47 PM #9
Starglow Starglow is offline
Junior Member
 
Join Date: Dec 2009
Location: North Carolina
Posts: 13
10 yr Member
Starglow Starglow is offline
Junior Member
 
Join Date: Dec 2009
Location: North Carolina
Posts: 13
10 yr Member
Default Care to elaborate....?

"I am almost certain that gabbapintin is part of the cause of my neuropathy"

I just started taking Gabapentin yesterday and would be very interested in hearing why you think it caused your neuropathy?

Thanks....!
Starglow is offline   Reply With QuoteReply With Quote
Old 12-30-2009, 03:44 AM #10
Dhreg Dhreg is offline
New Member
 
Join Date: Dec 2009
Posts: 3
10 yr Member
Dhreg Dhreg is offline
New Member
 
Join Date: Dec 2009
Posts: 3
10 yr Member
Default

Quote:
Originally Posted by Starglow View Post
"I am almost certain that gabbapintin is part of the cause of my neuropathy"

I just started taking Gabapentin yesterday and would be very interested in hearing why you think it caused your neuropathy?

Thanks....!
It is not from any medical experience it is just that since i started taking gabbapinton it just seemed that my PN became worse . I took it for about a year religiously like i was told by my pain management doctor. I really started having serious hate ons for the doctors since then . Its just that with all the meds I have taken in the last 5 years , the gabba was the only one that I saw any type of change for the worse with . Could really have been my own imagination I guess , but still ....
Dhreg is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
paraneoplastic/SF-non lenght dependent neuropathy/demyelinating neuropathy pelztier86 Peripheral Neuropathy 16 05-21-2013 12:16 PM
Small Fiber Neuropathy (or Length-Dependent Neuropathy) plgerrard PN Tips, Resources, Supplements & Other Treatments 1 05-09-2010 06:56 AM


All times are GMT -5. The time now is 11:18 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.