NeuroTalk Support Groups - Neuropathy does improve

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Peripheral Neuropathy (https://www.neurotalk.org/peripheral-neuropathy/)

- - Neuropathy does improve (https://www.neurotalk.org/peripheral-neuropathy/43699-neuropathy-improve.html)

Thanks needed to hear neuropathy can heal--I'm into natural health--new at all this due to a neck injury, and hope can get off pills, and stay natural--thanks for the hope.

a review paper on supplements/alternative therapies useful for PN

I found this: Peripheral Neuropathy: Pathogenic Mechanisms
and Alternative Therapies
After reading through the posts here, hardly any information is new :)
Still, it can be useful as a scholarly reference and it has info on doses too.
sUsY

Thanks for the link. I'm putting it up in the Supplement thread.

Some of the things appearing in that paper, echo me quite a bit:confused:

even magnets! Oh, well.

The paper is good for showing studies and results.
Thorne is the company that mostly is sold thru doctors.

Does this thread also apply to trigeminal neuropathy? Is there a chance it will improve in time without treatment?

Trigeminal neuropathy is usually a compressive disorder.
So most of the treatments are to locate and remove the compression.

However it is a long complex nerve with many branches, and like other nerves, may react to other environmental insults.

If other symptoms are present in other nerves, then that would be a hint that something more global were going on. If only confined to the face then the trigger is most likely in the head/neck somewhere.

There are healing things/supplements you can try.
Fish oil or Krill oil, helps nerves. And lipoic acid can help.
It also depends on whether you had blood work done on B12 and Vit D to see if you need those. Labs in US are typically low in range, so if you are below 400, you could take a oral methylB12 daily and see if that helps.

Quote:

Originally Posted by LizaJane (Post 260303)

Jarrett--The doctors showed way too little interest in what I had to say, unfortunately. But the protocol I followed is the one posted in the stickies. There's a list of supplements, and the advice: use it or lose it. You have to keep trying to use muscles that you cannot feel, or which are weak, to keep stimulating the nerves leading to them.

What/where are the Stickies? I am trying to find the protocol LizaJane posted in the stickies.

thanks.

Hi Dockmaster
You are on the stickies :)
If you look at the forum as a whole you will see the threads on top are "stuck" or pinned there so that they always remain at the top for reference.

http://neurotalk.psychcentral.com/forum20.html

I'd like to add that when you come here off Google, you cannot see our index, etc. You are entering a long active thread.

At the bottom of this page are page numbers. Go to page ONE and then start reading. That is where this particular sticky begins.

Click on Peripheral Neuropathy on the top of the page to view the other 2 stickies if you choose.

Quote:

Originally Posted by Wing42 (Post 260144)

in spite of a negative prognosis from three neurologists. I was in severe pain and burning for years, with loss of balance, foot drop causing frequent stumbles, no ankle reflex in left and 50% in right, and hardly able to walk. The pain ranged from 6-8 on the 0-10 scale with breakthrough pain at 9 or 10 experienced as either electric zaps, or feeling like a carnivorous worm was eating at my toe and metatarsal joints. I also had extremely hypersensitive skin, and other areas where the skin was numb enough to stick a pin in.

Now, I walk or hike an average of 12,000 steps a day on my pedometer, have wonderful balance (not as good as in 1992, but I'm 65 yrs old now). My pain ranges from 0 to 4 with very occasional breakthrough pain in the 6 or 7 range, about 2 now as I type this. Both ankle reflexes were measured at 100%. There are still some mildly numb skin areas, but almost no hypersensitivity. I still show some neuropathy when tested with two points, tickle, and vibration. EMGs and nerve conduction tests have always been normal since my PN was small fiber sensory.

OK, it's not healed, but I can happily go through the rest of my life like this. No longer does the pain wakes me up, stop me from walking or driving, and is never so bad that it's hard to concentrate.

The program I've followed all these years is on page 3 :confused: of the stickies. There have been changes to it the past couple of years, but the the essential program hasn't changed. It's a hassle to edit old postings on this forum, but I'll work with a moderator to do so one of these months.

A CHANGE: I meant page 2 of the stickies. The neuropathy must be affecting what remains of my brain. :o

Spilling through the many layers of info in this wonderful web site... Many years later, thank you for the hope!
Heb1212

Have PN - Will Improve

Thought I'd add my 2¢ to this thread, FWIW. I'm getting better, little by little. It's a journey, with hills & valleys, hazards, roadblocks, detours, etc. Hope & Heartbreak.

At my worst, about a year & a half ago, I had all the classic symptoms: numbness, pins & needles, cramps, electric shocks, needle jabs, burning pain, hypersensitivity. Numbness extended halfway up to my knees. Moderate peripheral edema extending halfway to knees.

About that time I began my regimen of methyl B12, & RLA. Tried some others that didn't seem to have any effect, so stopped those, and tried others. Still trying/rotating supplements. Also on High Protein/Low Carb diet - little/no sugar - sugar exacerbates symptoms.

IMO, from what I can tell, RLA, B12, & B5 have been most beneficial to me. Burning pain has been pretty much gone since beginning RLA w/ some tolerable flares. Have a prescription for gabapentin, but have not taken/needed any since beginning RLA. Numbness, pins & needles, cramps, electric shocks, needle jabs all greatly improved. Remaining symptoms now confined to front half of feet. Still have some hypersensitivity in feet, some cramps, occasional "rudeness" of the feet. Still have moderate peripheral edema extending halfway to knees. Massaging helps both edema and PN.

I feel I have pretty much attained my initial goal of arresting/stopping progression, and am now looking into pursuing healing/neurogenesis.

Doc