advertisement
Reply
 
Thread Tools Display Modes
Old 10-26-2012, 01:26 PM #261
Jesse M Jesse M is offline
Member
 
Join Date: Oct 2012
Location: I live in Chicago - a very diverse city.
Posts: 126
10 yr Member
Jesse M Jesse M is offline
Member
 
Join Date: Oct 2012
Location: I live in Chicago - a very diverse city.
Posts: 126
10 yr Member
Default

Quote:
Originally Posted by Rosie33 View Post
I'm so glad that you're feeling better but I'm not understanding what you mean by being "floxed" by Cipro. Were you taking it to help your PIN or did you stop taking it? If you would be so kind to explain.
I was prescribed Cipro for a minor prostate infection and ended up getting poisoned by it "floxed" as so many others term it. Cipro and Levaquin and other Floroquinolone anti-biotic drugs cause Peripheral Neuropathy as a side effect. (as well as other well-known drugs) This is known as Toxic Neuropathy Secondary to Medication according to the Center for Peripheral Neuropathy in Chicago as well as others.

Basically, it's generally said that most PN caused by drugs does go away in time, but in really "EXTREME" cases it MIGHT be permanent.

Of course, the big question is what is determined "Extreme" as most people suffering from PN will certainly feel they are extreme cases due to the pain they get. But there doesn't seem to be an answer for that. Below is my personal blog-case and how I ended up with PN, though I don't know if I'm an extreme case (I certainly hope not - that would lean towards a permanent damage, and frankly, I don't feel like that now-a-days)

I have Peripheral Neuropathy from a prescribed, 21-day treatment of Ciprofloxacin (500 MG twice a day) back in June 2012 for a case of prostatis. After 3 weeks, I first noticed the pain and then I quickly stopped taking it after noticing very severe pains. Now, 3 months later in October, I still have frequent pains though they are far less painful.

At the time, I was taking Cipro I was also taking the NSAID Naproxen (1 pill per day and my 1 MG of Clonazapam twice a day). I have discovered afterward that taking NSAIDS and benzos such as Clonazapam/Klonapin while taking Cipro augments Cipro Toxicity. I have had many tests done – I do NOT have diabetes or MS. So this suggest further that my Neuropathy is from taking Cipro.

I had regularly drunk less/or about one 6 -pack of beer on the weekend – so alcoholism seems a very unlikely cause. Now, in October of this year, I still suffer from daily pains of needle and pinpricks and cramps, especially in my feet, toes, and fingers. What has changed is that I no longer feel the hardcore stabbing pains in my toes or the prolonged cramps.

I even have days where I feel “Almost Normal”. Basically I’m afraid of what most Cipro poisoned people are of – that this pain will last for the rest of our lives. Still, I feel much better then I did 3 months ago, especially after taking the four vitamins I’ve been taking daily since august. (Vitamin C 120 mg, Omega 3 120 mg, Magnesium 250 mg and B-12 500 mcg).

The thing is, my urologist did NOT tell me the dangers of the drug, and even told me to take it with NSAIDS and my Clonazepam! I'm was also told to take it for another three weeks, which luckily I did NOT!!! 2 ER doctors told me the PN was most likely from Cipro which is very rare for doctors to admit. 1 doctor told me to stop taking Cipro immediately and the side effects will fade away in time. Which seems true, at least to a certain extent. --Of course the time to heal probably varies from person to person.

I asked why they thought this and they said: "You have no history of any ailment that would give you PN - it would be astronomical, a million to one, that you'd get PN by any other means at exactly the same time you've been taking a drug well-known to cause it."

Basically they said all they could without getting into trouble that Cipro caused my PN -still, my neurologist doesn't believe it, despite all the tests that I took that eliminate other causes.

I told my neurologist that I still have frequent pains daily, especially in my hands and feet (fingers & toes mainly) and truthfully they are fading away, just very slowly, as they are clearly not as severe as before.

She simply told me -" if they are fading away -then you don't have anything to worry about then."
As condescending as she sounds, I hope it's true.

Last edited by Jesse M; 10-26-2012 at 10:57 PM. Reason: Quoting from a site that has COPYRIGHT
Jesse M is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Rosie33 (10-27-2012)

advertisement
Old 11-06-2012, 09:00 AM #262
susie34 susie34 is offline
Junior Member
 
Join Date: Oct 2012
Posts: 6
10 yr Member
susie34 susie34 is offline
Junior Member
 
Join Date: Oct 2012
Posts: 6
10 yr Member
Default

hi everyone i am new and had gotten small fiber,we think it has only been 9 weeks with it,after recieving a tetanus vaccine! i am so new that i just got a mri approved for my head,wich i think will show nothing!my neuro said this will go away and kind of dismissed me!pain is about a 8,burning,numbness,you guys know!my question is since it is immune,i cant seem to find anyone who just let it go and healed naturally,has any of you with an immune neuropathy?also,is ivig treatment time sensitive,meaning a year from now can i get it and will it work being that long in the neuropathy?i love everyone got better on this post naturally,please share all you can on that,that is the way i want to go,thankk you and God bless,know that God has a plan for us even if we have sickness his grace will get us through!
susie34 is offline   Reply With QuoteReply With Quote
Old 11-06-2012, 09:08 AM #263
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

Quote:
Originally Posted by susie34 View Post
hi everyone i am new and had gotten small fiber,we think it has only been 9 weeks with it,after recieving a tetanus vaccine! i am so new that i just got a mri approved for my head,wich i think will show nothing!my neuro said this will go away and kind of dismissed me!pain is about a 8,burning,numbness,you guys know!my question is since it is immune,i cant seem to find anyone who just let it go and healed naturally,has any of you with an immune neuropathy?also,is ivig treatment time sensitive,meaning a year from now can i get it and will it work being that long in the neuropathy?i love everyone got better on this post naturally,please share all you can on that,that is the way i want to go,thankk you and God bless,know that God has a plan for us even if we have sickness his grace will get us through!
Welcome to NeuroTalk:

I am sorry to learn of your distress. Vaccines do cause reactions in some people. We have had posters here with H1N1 reactions, adult pertussis, rabies vaccine, etc.
I know of one other who had a tetanus booster and ended up with long term side effects. (she doesn't post on NT much anymore). The gentleman who had the H1N1 reaction was from Canada, and he was given 2 injections of that, by accident, and had severe problems. His doctor put him on steroids.

The reactions mostly come from the adjuvants in the vaccine. Some people have temporary reactions because of these and others may develop long term reactions because of their genetics and may be triggered into an autoimmune reaction.
Dr. Blaylock has videos on YouTube about vaccines. You can search him there. I have a vaccine here also with more information.
http://neurotalk.psychcentral.com/thread163906.html
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
Old 11-06-2012, 01:50 PM #264
susie34 susie34 is offline
Junior Member
 
Join Date: Oct 2012
Posts: 6
10 yr Member
susie34 susie34 is offline
Junior Member
 
Join Date: Oct 2012
Posts: 6
10 yr Member
Default

hi mrs.d,i looked over the info,i guess what i am looking for is ppl who had a vaccine related neuropathy and what they did?and how the future was with no treatment?i am not getting much help and i have just decided to let it go,take the vitamins and see if it will go on its own or get better,i dont really know of anyone who has had this happen and i really dont want to start ivig if i dont have too,what would you do mrs.d? i ask my family dr. he told me to stop testing and wait it out,just nerves i will do more harm than good,but if there is no cure than my body will do what it wants! any help or advice at this point will help
susie34 is offline   Reply With QuoteReply With Quote
Old 11-07-2012, 06:02 AM #265
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

Use our search function and keyword "vaccine" and you will find the posts here.

I believe many people have reactions. In fact if you watch the TV ads, for the various vaccines, they state on the commercial the risk of GBS... which is a serious motor and sensory neuropathy.

It is just that the medical community WANTS to give vaccines,
and doesn't want you to refuse them.

http://www.vaccineinjuryhelpcenter.c...-nerve-damage/
this link will explain in more detail.

The people who get reactions are sometimes diagnosed with something else entirely at the time and doctors typically won't connect to the vaccine at all.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
Old 11-07-2012, 04:26 PM #266
susie34 susie34 is offline
Junior Member
 
Join Date: Oct 2012
Posts: 6
10 yr Member
susie34 susie34 is offline
Junior Member
 
Join Date: Oct 2012
Posts: 6
10 yr Member
Default

mrs.d that was scary reading all the posts about what happened after the vaccines,i cant read stuff like that,although it is true,i have to stay positive and now my mind and my body are connected! God is good and this will all work out!
susie34 is offline   Reply With QuoteReply With Quote
Old 11-07-2012, 04:40 PM #267
susie34 susie34 is offline
Junior Member
 
Join Date: Oct 2012
Posts: 6
10 yr Member
susie34 susie34 is offline
Junior Member
 
Join Date: Oct 2012
Posts: 6
10 yr Member
Red face

mrs.d,i am taking the vitamins and i also am joining a gym,what is your view on auto immune neuropathy going into remission on its own?also,any more advice?thank you
susie34 is offline   Reply With QuoteReply With Quote
Old 11-07-2012, 04:48 PM #268
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

Some mild reactions may clear on their own.

But typically autoimmune reactions are serious.
Alot depends on what the adjuvants are in the vaccine.

The more irritating aggressive additives cause more reactions.
The worst is thought to be squalene. This is supposedly not in US vaccines, but H1N1 imported to US after we ran out, had it.
And the military supposedly used squalene in the Anthrax vaccine given to the soldiers who went to Iraq. Squalene has shown severe risk in animals to cause autoimmune reactions that are serious.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
Old 11-07-2012, 05:07 PM #269
susie34 susie34 is offline
Junior Member
 
Join Date: Oct 2012
Posts: 6
10 yr Member
susie34 susie34 is offline
Junior Member
 
Join Date: Oct 2012
Posts: 6
10 yr Member
Smile

mrs.d i agree with you,i will not ever get a vaccine,i only got the ones since i was a kid and only 2 tetanus shots my whole life! i stepped on nails! lesson learned to late,i know they were from sanifi pastur,i think im spelling it wrong,so i have no way of knowing whats in them,but anyway,i just have pain,numbness,and no weakness or loss of reflexes so who knows! i just want to thank you and also thank you for helping all the other people who have no one to talk to about their illness,that makes you awesome.................
susie34 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Sallysblooms (11-07-2012)
Old 11-25-2012, 09:35 AM #270
MikeB MikeB is offline
Junior Member
 
Join Date: Jul 2012
Location: N.E. PA
Posts: 12
10 yr Member
MikeB MikeB is offline
Junior Member
 
Join Date: Jul 2012
Location: N.E. PA
Posts: 12
10 yr Member
Default

Quote:
Originally Posted by Jesse M View Post
I was prescribed Cipro for a minor prostate infection and ended up getting poisoned by it "floxed" as so many others term it. Cipro and Levaquin and other Floroquinolone anti-biotic drugs cause Peripheral Neuropathy as a side effect. (as well as other well-known drugs) This is known as Toxic Neuropathy Secondary to Medication according to the Center for Peripheral Neuropathy in Chicago as well as others.

Basically, it's generally said that most PN caused by drugs does go away in time, but in really "EXTREME" cases it MIGHT be permanent.

Of course, the big question is what is determined "Extreme" as most people suffering from PN will certainly feel they are extreme cases due to the pain they get. But there doesn't seem to be an answer for that. Below is my personal blog-case and how I ended up with PN, though I don't know if I'm an extreme case (I certainly hope not - that would lean towards a permanent damage, and frankly, I don't feel like that now-a-days)

I have Peripheral Neuropathy from a prescribed, 21-day treatment of Ciprofloxacin (500 MG twice a day) back in June 2012 for a case of prostatis. After 3 weeks, I first noticed the pain and then I quickly stopped taking it after noticing very severe pains. Now, 3 months later in October, I still have frequent pains though they are far less painful.

At the time, I was taking Cipro I was also taking the NSAID Naproxen (1 pill per day and my 1 MG of Clonazapam twice a day). I have discovered afterward that taking NSAIDS and benzos such as Clonazapam/Klonapin while taking Cipro augments Cipro Toxicity. I have had many tests done – I do NOT have diabetes or MS. So this suggest further that my Neuropathy is from taking Cipro.

I had regularly drunk less/or about one 6 -pack of beer on the weekend – so alcoholism seems a very unlikely cause. Now, in October of this year, I still suffer from daily pains of needle and pinpricks and cramps, especially in my feet, toes, and fingers. What has changed is that I no longer feel the hardcore stabbing pains in my toes or the prolonged cramps.

I even have days where I feel “Almost Normal”. Basically I’m afraid of what most Cipro poisoned people are of – that this pain will last for the rest of our lives. Still, I feel much better then I did 3 months ago, especially after taking the four vitamins I’ve been taking daily since august. (Vitamin C 120 mg, Omega 3 120 mg, Magnesium 250 mg and B-12 500 mcg).

The thing is, my urologist did NOT tell me the dangers of the drug, and even told me to take it with NSAIDS and my Clonazepam! I'm was also told to take it for another three weeks, which luckily I did NOT!!! 2 ER doctors told me the PN was most likely from Cipro which is very rare for doctors to admit. 1 doctor told me to stop taking Cipro immediately and the side effects will fade away in time. Which seems true, at least to a certain extent. --Of course the time to heal probably varies from person to person.

I asked why they thought this and they said: "You have no history of any ailment that would give you PN - it would be astronomical, a million to one, that you'd get PN by any other means at exactly the same time you've been taking a drug well-known to cause it."

Basically they said all they could without getting into trouble that Cipro caused my PN -still, my neurologist doesn't believe it, despite all the tests that I took that eliminate other causes.

I told my neurologist that I still have frequent pains daily, especially in my hands and feet (fingers & toes mainly) and truthfully they are fading away, just very slowly, as they are clearly not as severe as before.

She simply told me -" if they are fading away -then you don't have anything to worry about then."
As condescending as she sounds, I hope it's true.
Hi Jesse M.
I consider myself with severe neuropathy, hands and especially feet and lower legs.
For the past 10 years or so, I've had to take Cipro for problems related to diverticulitus. At least 3 times, maybe 4.
Can you give me more information on the Cipro "Floxed" condition?
Thanks!
Mike
MikeB is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
paraneoplastic/SF-non lenght dependent neuropathy/demyelinating neuropathy pelztier86 Peripheral Neuropathy 16 05-21-2013 12:16 PM
Small Fiber Neuropathy (or Length-Dependent Neuropathy) plgerrard PN Tips, Resources, Supplements & Other Treatments 1 05-09-2010 06:56 AM


All times are GMT -5. The time now is 03:02 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.