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-   -   Neuropathy does improve (https://www.neurotalk.org/peripheral-neuropathy/43699-neuropathy-improve.html)

Jesse M 04-05-2013 02:50 PM

Quote:

Originally Posted by mrsD (Post 972307)
Yes, it is a common brand.

http://www.naturesbounty.com/pages/our_company.aspx

GMP is typically found on the better brands.

Oh - so it's an alright brand to start taking then? ...What is "GMP"?:winky:

pollyh 04-06-2013 05:38 AM

Quote:

Originally Posted by ginnie (Post 964050)
The other post was correct. The B vitamines do help. I was not a believer in them at all. I have PN and was not walking well last year. Now I am better and the pain level has gone down. My activity level has gone up. I went a further step and give myself B12 weekly by injection. Small price to pay for good results. Just know there is hope less pain. ginnie:hug:

Thank you Ginnie for your reply, I have started to take your advice, I am now taking vitamin B12 + E, However I saw the doctor yesterday, and he has now advised me to up my dosage of Gabapentin to 600 mg ( Twice Daily ) yet more pills when will this nightmare end !!!!

Pollyh :hug:

hopeful 04-06-2013 06:56 PM

Quote:

Originally Posted by Jesse M (Post 972312)
Oh - so it's an alright brand to start taking then? ...What is "GMP"?:winky:

Hi Jesse,
I am not certain but I believe GMP means good manufacturing practice.:)

Jesse M 05-08-2013 06:14 PM

Is L-Carnitine L- Tartrate as effective 4 neuropathy as Acetyl L -Carnitine???
 
I just bought a bottle of 500mg L-Carnitine and now noticed in the back it's labelled as " L-Carnitine L- Tartrate". I read some confusing articles on the net. Is it the same "effectively " for Neuropathy as Acetyl-L-carnitine? ...I need to know before taking it.

Basically, I hear its both an analgesic and nerve/growth and protector. Does anyone here tale this? And can anyone please help me out with this?

jlev 12-06-2013 05:11 PM

New Comer
 
Hi - I am new here. I am trying to follow all the information for supplements being suggested and I'm finding it a bit confusing. Are you taking all these as separate vitamins or are there formulas with some of them combined? How many times a day are you taking supplements?

Also, did you discontinue any medications given to you by the doctors or are these supplements in addition to medication from doctors?:confused: Thanks for any help you can provide. Basically, I could use a "cheat sheet" with all the supplements I should consider taking.

mrsD 12-06-2013 05:25 PM

One should choose supplements based on their history and tests.

The Big Three... most people can use . methylB12, Vit D, and magnesium. Other supplements can be chosen depending on your type of PN... diabetic, alcohol, toxin, etc. If you have a hereditary form of CMT...then most supplements won't work. But using the Big Three will confer other health benefits and are worth trying.

Dr. Smith 12-07-2013 01:29 AM

Quote:

Originally Posted by jlev (Post 1034806)
Are you taking all these as separate vitamins or are there formulas with some of them combined?

Yes, there are "formulas"—all kinds of price-inflated mixtures with marketing tailored to peoples' suffering and desperation, and claims falling just short of promising miraculous results—by the copious/profuse use of plethoras of weasel words.

There are 2 basic problems with these combined formulas:

1. They usually wind up costing at least twice what they would if you purchased the exact same constituents separately.

2. They can't be tailored for an individual's specific needs, as you can by obtaining supplements separately and taking what you need—and only what you actually need—in the appropriate amounts. No formula is likely to have everything one needs, and at the same time, not contain stuff you don't need.

Quote:

Also, did you discontinue any medications given to you by the doctors or are these supplements in addition to medication from doctors?
I wouldn't discontinue any medication prescribed by a doctor without their knowledge—at the very least—and preferably their consent/sanction. In some cases supplements are taken in addition to prescribed medications; in others, they are taken in lieu. Example: I was prescribed gabapentin for the burning pain of PN. After learning about it here, following up with my own research, and discussing it with my doctor, I found that taking R-Lipoic Acid stopped the burning pain completely. I told my doctor about it, and he had no problem with my taking it instead of the gabapentin.

Quote:

Basically, I could use a "cheat sheet" with all the supplements I should consider taking.
Would I be wrong in guessing that basically, you're looking for a quick fix? I think many of us came here thinking/hoping the same thing. I did. There isn't one. We've all pretty much had to put in some time reading, learning, and discussing all this stuff here. Fortunately there are some very knowledgable folks here whose generous contributions & participation have saved many of us a lot of time and duplicated effort. That's worth a lot when things get so confusing and overwhelming.

I think it's still wise to take things one step at a time, so you know what's working, and what's waste.

Doc

ElaineD 12-07-2013 11:20 AM

Neuropathy can improve IF the cause found/stopped, AND the neuropathy is a sort that can be reversed.

NOT ALL NEUROPATHIES can be fixed.

It would be 'Lovely to think so' but it isn't true.

Elaine

echoes long ago 12-07-2013 01:20 PM

Quote:

Originally Posted by dr. Smith (Post 1034908)
yes, there are "formulas"—all kinds of price-inflated mixtures with marketing tailored to peoples' suffering and desperation, and claims falling just short of promising miraculous results—by the copious/profuse use of plethoras of weasel words.


Doc

..........+100

doubleagle15 12-09-2013 08:09 AM

Quote:

Originally Posted by jarrett622 (Post 260237)
That is wonderful news! It gives me much hope and I've wondered lately what a repeat nerve conduction study would show for my condition.

If you have the time, I'd like to hear more about the CoQ10 and acetyl L carnitine as well as the antioxidents you've been taking. I trust your knowledge as you're the one that pointed me to the B-12 therapy. :) Which has brought such relief to my symptoms.

What did the Docs say after you told them how you were treating your condition? I'd have loved to have been a fly on *that* wall. :D


Which form of Coq-10 are you taking there are 2 forms.


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