I use Fentanyl 75 mcg patches-1 every 72 hours. I find that these work great. I am one year post diagnosis, and have improved from basically not being able to walk at all to running three miles per day, swimming, riding my bike, walking my dog, etc.

Please don't think I'm a religious nut, but I received a spiritual healing as well. While not relieved of my condition, I was very much relieved of the bondage that the disease held me in. Literally happened overnight. I thank God every single day, and strongly encourage my fellow pn'ers to go to God and ask for healing. Nothing has helped me more, and I live my life in constant gratitude now.

The futur is neurogenesis for nerve lesion (regrowth of nerve)

Here you can help yourself with :

HORMONES
Pregnenolone Testosterone
Androstenedione Dehydroepiandrosterone
(DHEA)
Chorionic Gonadotropin Growth Hormone
AMINO ACIDS
Taurine Gamma Amino Butyric Acid
Glycine Phenylalanine
NERVE TISSUE BUILDER
Alpha Lipoic Acid

My doctor say's I have severe peripheral nueropathy, it buzzes like crazy, i am on gabapentin, but it just seems like i am the electric man, feet spliting and all, can't handle it too much longer, nothing is working, I walk like a person with palsy and can't help it. Wow!

Thanks, Liza for posting. It is good to post positive stuff too. You've probably spread a bit hope around, not a bad thing.

Yes, I agree. My neuropathy has definitely healed too somewhat but it has been a slow process and at first I didn't even recognize that it was actually getting better. But when I stop and remember how much pain I used to feel walking the dogs for a couple of blocks. I would limp and have sharp shooting pains along with other kinds of pains and have to go very slow and be in a fair amount of pain overall.

It has been quite a while since walking the dogs has caused me very much discomfort. There is definitely still numbness but I don't get totally wiped out after going grocery shopping or shopping of any kind like I used to.

I have struggled to stay off the pain meds and it looks like I may succeed. I take aspirin now and then when I may have one of my bad days but mostly I do the B12, Bcomplex, benfotiamine (which may be the real reason for the healing IMO, don't know for sure) and ALC, ALA, MSM, Glucosamine, NAC, and lots and lots of other vitamins and supplements.

I have stayed away from doctors for a couple of years now, so I have no recent nerve velocity test to compare. Will probably try that again just for a checkup but I HATE doctors so much, they might cause me to have a relapse.

Texasgeek - what is MSM and NAC that you reference in your post? I found the list for mrsD of supplements know to help but can't find those two.

Thanks for much for your help...

BUT, I hate having to WAIT for doctors. I have waited and waited and waited for hours for doctors. And some definitely not worth the wait.

Hi - just wondering, how are you feeling now? has it gotten better?

...relentlessly progressive , irreversable once established ,thats just a sampling of the prognosis of neuropathy found on most sites and unfortunantly in the mind of much of the medical profession. Little wonder that most newcomers to this forum are so traumatized by their symptoms and diagnosis. Thank goodness for the positive reporting from others on this site such as Wings and Liza. Yesterday marked my one year anniversary of this wretched disorder and I am much better. My pain has all but disappeared and my balance improved, for this I am delighted. I follow Mrs Ds regimen suggestion in the stickies faithfully. Does it help? I can only assume so , but I sure didnt get any suggestions from the Docs. And for the sake of any newcomers to this site looking for a glimmer of hope or a bit of advice concerning strange symptoms ,I shall list the following..piercing, crushing, unseen insects crawling, searing burning ,electrical shocks ,invisible rain drops , pins and needles and all around feeling lousy! So no ,you are not crazy ,and you can get better! Thanks to all....Tom

Tom -

I have read the list of supplements on the stickie and am anxious to get started on them. However, newly being diagosed I am still going through the tests to see if the cause can be determined. Can you advise which of the supplements did you take? All of them? Will you share the cause of your PN?

Thank you!

Thanks so much! I went to the Neurosurgeon God today and left with my usual disgust and order for a new MRI.

Once again, God Bless You all for sharing. At least I know I am not completely crazy yet.