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Old 09-14-2008, 11:19 AM #1
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Default lost newbie found stickies!

Hi Judy! You're in the stickies. The stickies are subjects of such importance that they're 'stuck' at the top of the board so everyone can always get to them. Go back to the main page of PN and the very first 3 topics are stickies. The one you want is the second topic. That contains a lot of info about different types of treatments and supplements, vitamins and other things that have helped people with PN.

Just to make sure you get there in one piece...
Also, notice at the beginning of a topic it says stickie?

thanks Jarret, I wasn't quite sure where the stickies were either. I can't believe I found this site that has many different opinions & suggestions about PN. I've been in pain for about 4 yrs now, on my feet every day, and by time I get home, just want to put feet up to rest.
Frank
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Old 09-16-2008, 04:18 PM #2
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Hi Judy! You're in the stickies. The stickies are subjects of such importance that they're 'stuck' at the top of the board so everyone can always get to them. Go back to the main page of PN and the very first 3 topics are stickies. The one you want is the second topic. That contains a lot of info about different types of treatments and supplements, vitamins and other things that have helped people with PN.

Just to make sure you get there in one piece...
Also, notice at the beginning of a topic it says stickie?

thanks Jarret, I wasn't quite sure where the stickies were either. I can't believe I found this site that has many different opinions & suggestions about PN. I've been in pain for about 4 yrs now, on my feet every day, and by time I get home, just want to put feet up to rest.
Frank
I searched for some time before I 'stumbled' onto this site. Mostly late at night because my feet were killing me and I couldn't sleep. Boy things sure have changed for me since coming here!

Barbara
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Leslie (10-07-2008)
Old 09-17-2008, 09:33 PM #3
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Just came back here on a whim. Remember me? My nick on the old board was SteveInTrouble.

Burning flesh, couldn't wear clothes, radiating nerve pain, yadda yadda. Dx of small-fiber neuropathy.

All gone. It was a huge amount of work. And expense. But most days I don't even remember I had it.

I credit the info I found here, and on the TOS forum. Thanks all--and good luck!
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aj30 (12-12-2014), Hope15 (06-03-2009), Leslie (09-18-2008), onlyhuman (09-02-2016)
Old 09-17-2008, 11:38 PM #4
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Just came back here on a whim. Remember me? My nick on the old board was SteveInTrouble.

Burning flesh, couldn't wear clothes, radiating nerve pain, yadda yadda. Dx of small-fiber neuropathy.

All gone. It was a huge amount of work. And expense. But most days I don't even remember I had it.

I credit the info I found here, and on the TOS forum. Thanks all--and good luck!
That's incredible and so wonderful!!! I have days where I feel like giving up. I have days that are so miserable when I contemplate living the rest of my life like this and will it get worse, better, what?? It *really* helps to see these kinds of posts.
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Old 03-13-2009, 12:29 PM #5
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Originally Posted by Steve View Post
Just came back here on a whim. Remember me? My nick on the old board was SteveInTrouble.

Burning flesh, couldn't wear clothes, radiating nerve pain, yadda yadda. Dx of small-fiber neuropathy.

All gone. It was a huge amount of work. And expense. But most days I don't even remember I had it.

I credit the info I found here, and on the TOS forum. Thanks all--and good luck!
Steve, sent you a PM. What is the TOS Forum?

Jay
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Old 10-19-2010, 10:22 AM #6
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So Steve, what can I do to be on the road to getting results like you have.

Thanks for taking your time to answer.

Rick
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Old 03-11-2016, 07:06 PM #7
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Originally Posted by Steve View Post
Just came back here on a whim. Remember me? My nick on the old board was SteveInTrouble.

Burning flesh, couldn't wear clothes, radiating nerve pain, yadda yadda. Dx of small-fiber neuropathy.

All gone. It was a huge amount of work. And expense. But most days I don't even remember I had it.

I credit the info I found here, and on the TOS forum. Thanks all--and good luck!
Steve, i read you on another site asking is this can be anxiety. So do you have a diagnostic of small fiber?? and how you cure that? thanks
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Old 03-11-2016, 07:14 PM #8
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btw how do you diagnostic neuropathy? I have often burning pains and even a bone pains sensation. Sometimens comes, sometimes goes. My EMGs are all negative; MRI all negative, QST one is positive and another negative. My GP wont run a nerve biopsy. Vitamin D is in deficiency.. Please if anybody read that i know you can have more experience than me. Its really a neuropathy? It could really be a psychogenic pain? I have it since long and i dont sure about the last thing:S And if was a neuropathy or a psychogenic how does improve that??
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Old 03-11-2016, 09:06 PM #9
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btw how do you diagnostic neuropathy? I have often burning pains and even a bone pains sensation. Sometimens comes, sometimes goes. My EMGs are all negative; MRI all negative, QST one is positive and another negative. My GP wont run a nerve biopsy. Vitamin D is in deficiency.. Please if anybody read that i know you can have more experience than me. Its really a neuropathy? It could really be a psychogenic pain? I have it since long and i dont sure about the last thing:S And if was a neuropathy or a psychogenic how does improve that??
I have SFN diagnosed with a skin biopsy. Just having the diagnosis eased my mind. It helps to know that I'm not crazy. Especially since the first neuro I went to told me I was making up my symptoms. I honestly thought I was losing it.
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Old 03-11-2016, 09:47 PM #10
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Angry

had enough of so called doctors if you see 4 of them for the same problem you have 3 different answers!!
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