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Old 09-17-2008, 09:33 PM #1
Steve Steve is offline
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Just came back here on a whim. Remember me? My nick on the old board was SteveInTrouble.

Burning flesh, couldn't wear clothes, radiating nerve pain, yadda yadda. Dx of small-fiber neuropathy.

All gone. It was a huge amount of work. And expense. But most days I don't even remember I had it.

I credit the info I found here, and on the TOS forum. Thanks all--and good luck!
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Old 09-17-2008, 11:38 PM #2
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Just came back here on a whim. Remember me? My nick on the old board was SteveInTrouble.

Burning flesh, couldn't wear clothes, radiating nerve pain, yadda yadda. Dx of small-fiber neuropathy.

All gone. It was a huge amount of work. And expense. But most days I don't even remember I had it.

I credit the info I found here, and on the TOS forum. Thanks all--and good luck!
That's incredible and so wonderful!!! I have days where I feel like giving up. I have days that are so miserable when I contemplate living the rest of my life like this and will it get worse, better, what?? It *really* helps to see these kinds of posts.
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Old 03-13-2009, 12:29 PM #3
jsrail jsrail is offline
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Quote:
Originally Posted by Steve View Post
Just came back here on a whim. Remember me? My nick on the old board was SteveInTrouble.

Burning flesh, couldn't wear clothes, radiating nerve pain, yadda yadda. Dx of small-fiber neuropathy.

All gone. It was a huge amount of work. And expense. But most days I don't even remember I had it.

I credit the info I found here, and on the TOS forum. Thanks all--and good luck!
Steve, sent you a PM. What is the TOS Forum?

Jay
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Old 10-19-2010, 10:22 AM #4
Rick Stull Rick Stull is offline
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So Steve, what can I do to be on the road to getting results like you have.

Thanks for taking your time to answer.

Rick
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Old 03-11-2016, 07:06 PM #5
Marianolp Marianolp is offline
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Quote:
Originally Posted by Steve View Post
Just came back here on a whim. Remember me? My nick on the old board was SteveInTrouble.

Burning flesh, couldn't wear clothes, radiating nerve pain, yadda yadda. Dx of small-fiber neuropathy.

All gone. It was a huge amount of work. And expense. But most days I don't even remember I had it.

I credit the info I found here, and on the TOS forum. Thanks all--and good luck!
Steve, i read you on another site asking is this can be anxiety. So do you have a diagnostic of small fiber?? and how you cure that? thanks
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Old 03-11-2016, 07:14 PM #6
Marianolp Marianolp is offline
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btw how do you diagnostic neuropathy? I have often burning pains and even a bone pains sensation. Sometimens comes, sometimes goes. My EMGs are all negative; MRI all negative, QST one is positive and another negative. My GP wont run a nerve biopsy. Vitamin D is in deficiency.. Please if anybody read that i know you can have more experience than me. Its really a neuropathy? It could really be a psychogenic pain? I have it since long and i dont sure about the last thing:S And if was a neuropathy or a psychogenic how does improve that??
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Old 03-11-2016, 09:06 PM #7
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Originally Posted by Marianolp View Post
btw how do you diagnostic neuropathy? I have often burning pains and even a bone pains sensation. Sometimens comes, sometimes goes. My EMGs are all negative; MRI all negative, QST one is positive and another negative. My GP wont run a nerve biopsy. Vitamin D is in deficiency.. Please if anybody read that i know you can have more experience than me. Its really a neuropathy? It could really be a psychogenic pain? I have it since long and i dont sure about the last thing:S And if was a neuropathy or a psychogenic how does improve that??
I have SFN diagnosed with a skin biopsy. Just having the diagnosis eased my mind. It helps to know that I'm not crazy. Especially since the first neuro I went to told me I was making up my symptoms. I honestly thought I was losing it.
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Old 03-11-2016, 09:47 PM #8
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had enough of so called doctors if you see 4 of them for the same problem you have 3 different answers!!
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Old 03-12-2016, 12:11 AM #9
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Steve, i read you on another site asking is this can be anxiety. So do you have a diagnostic of small fiber?? and how you cure that? thanks
It's everything really. Sleep, stress, blood sugar (around 80 is good), proper water intake, a lower carb diet with plenty of protein and saturated fats and cruciferous vegetables (if that is the right diet for you), walking in nature and walking barefoot in the morning sun (mitochondria as mentioned before by LizaJane) the right supplements, being happy, sometimes a lifestyle change.

A good deal of disease is probably generated by our habits and most "disease processes" can be affected by the change of habit and attitude and even if they cannot be "cured" they can be greatly improved or managed.
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