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Old 05-08-2008, 06:27 PM #2
glenntaj glenntaj is offline
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glenntaj glenntaj is offline
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Join Date: Aug 2006
Location: Queens, NY
Posts: 2,857
15 yr Member
Default Well--Hopkins might be closer.

And, for my money, probably better at dealing with idiopathic small-fiber syndromes--much of the research into skin biopsy as a diagnostic, and norming of intraepidermal small-fiber nerve density, was done there, and the neurology department has several neuropathy experts.

Could you tell us what the results of the other tests were, and which ones you've had? I bet we could suggest others, many from the extensive Liza Jane spreadsheets (a great way to track tests over time, and suggest new ones to docs):

www.lizajane.org

What is the R-R test you refer to?

When I hear idiopathic small-fiber syndrome that is not diabetic, I immediately think monoclonal antibodies, vasculitis, and/or celiac/gluten sensitivity (there are other causes, but these seem to pop up more than others); have you had testing in those areas?

Last edited by glenntaj; 05-09-2008 at 09:08 AM.
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