How bad do side efffects have to get before you look for any other meds or type of treatment for PN? I am at 1800 mg a day, and the swelling in my lower legs and feet have them looking like tree stumps!

I also have another issue going on that most here would never have to deal with. After the removal of my complete colon, I had a reconstruction known as a j-pouch, where a reservoir was created out of my ileum and reattached to my sphincter. While a little occasional night-time incontinence is tolerable for most j-pouchers, when it becomes an every-night situation we usually look for reasons, because it is serious business when you operate sans-colon! Has anyone else experienced fecal incontinence as a side effect of Neurontin?

I am awaiting yet more lab and bloodwork, and will then have an idea if we can get closer to identifying the cause of my neuropathy. And my gastro, during my visit Friday, ordered a celiac or gluten-intolerance panel, even though he feels that my symptoms do not indicate it. And he even agreed that I would be caught between a rock and a harder, less forgiving rock, if it is positive . . . since the diet most j-pouchers survive on is almost the exact opposite of that adhered to by CD patients!