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Old 06-05-2008, 06:04 PM #21
dahlek dahlek is offline
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Default Janna? The 'lesions' thing?

I do believe I posted earlier in this thread and will reiterate that...IF you feel outta a tree as a kid, or got a concussion in a car accident or whatever even YEARS ago...those things do show as 'lesions'. That is why it is important to get and find keep hoard whatever copies of your prior films and reports on that brain of yours.
A few years ago I'd had a MRI and the 'readers' asked me about 'accidents' .. It'd been soo long ago [15+/-] years I really had to think about it? You tend not to think that things that long ago can affect you now? Once I recalled a solid concussion and how I'd fallen etc...the docs just went...OK That's that ... but we will 'watch' it. Essentially it means, that if IF you fell off the rocking horse in front of the K-Mart when you were 10 years old...YEPPERS it'll show up now. Key here to keep in mind, is that those 'lesions' do not change! Who could ask for more?
I agree with Many that you should see a specialist...but depending on where you live a GOOD or KEY specialist might not be available.... While a good NEURO PN specialist is ideal, often they aren't available? Maybe consider [and Bob please don't condemn me here?] a MS specialist? They are familiar with the old DEMEYELINATION word and could rule out MS fairly readily...maybe steer you to someone who can really zero in and help treat you. Honestly I don't think a Rheumy or an Immunologist will be much use with the whole NERVE issue, unless they are surprisingly enlightened?
There are docs out there who can help! Trick is finding them! 's and HOPE! - j
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Old 06-06-2008, 07:45 AM #22
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Default

Also, just a thought. One type of specialist that hardly
anyone thinks of, is a physiatrist, usually found under sports medicine.
But if you can get one who has experience with neurological problems,
it could help.
Their job is to see the whole picture and coordinate between
all of your docs, meds & tests.
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Old 06-06-2008, 08:09 AM #23
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Re: Physiatrist

At Methodist, Alan was referred to a Physiatrist by his neurologist. I had never heard of such a specialist before.

We were able to get in that same day.

She looked at Alan, watched how he walked, stood on his toes, his heels (whatever Physiatrists do.....this was a LONG time ago).

But the interesting thing was that she asked him if he had been at Ground Zero on 9/11.. Alan told her "no, I have had neuropathy much longer than 7 years".

She said: "do you know how many of my patients were there on 9/11?" And how many have come down with neuropathy??"

There HAS to be some correlation here. Exposure to toxic materials, etc.???
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Old 06-17-2008, 09:03 PM #24
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I DO NOT HAVE M.S. I have a bit of gray matter where white matter should be, probably happened as a baby when I started separating the gray matter from the white matter. Other than that, my brain is in pretty darn good shape for my age....I've lived long enough to have "for my age" added to conversations....ugh.
He agreed with Dahlek, my zings are probably from stopping lexapro, he wants me to take the lesser dosage of 10mg. for awhile and come back in a month.
On the very bright side, we mortgaged the farm and bought a Catalina swim spa, it is 1/3rd hot tub, 2/3rd's swim spa. Hubby has rheumatoid and I can't handle the heat but I love water exercise. It is going on our back deck, we poured concrete yesterday, the crane is setting the tub on Thursday and by Friday after work I should be in heaven. We were very nervous about more debt but hey with our health we might not have the golden years so we better make the best of it now. I feel so excited I have been wanting this for years...
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Old 06-17-2008, 09:29 PM #25
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Default Oh Tell Me More!

I am jealous and curious and beyond intrigued all at once! Wanna know! Wanna know more! Also sounds, well, romantic in some ways? Well, you know what I mean.....Tho in the winter, all I can think of is the whole Sauna Thing...going into the steam and then dousing w/COLD water? Not in my book, no way no how!
For me rite now even a good soak in a tub I feel would require a fork-lift or the like...we've no rails in the tub and I'd prefer to remodel before I get a fork lift installed? Spas tend to have really good steps and rails to ease the in/out processes... Yep, I'm sighing as I write this!
That MS is off the list? That is one very durned good thing! As one neuro I've seen says' One More off the LIST! Hooray! Hugs and hope! 's - j
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