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#1 | |||
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In Remembrance
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I recently saw a neurologist - he told me I had peripheral neuropathy. Oh well... Feet really hurt now - all the time.
Can anyone point me in the right direction where to get pertinent information on PN? I really don't have much free time, especially right now (I'm involved with shuttle missions). I was told I had MS in 1988, so neurological problems are not new to me. Thanks, Tom |
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#2 | |||
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Grand Magnate
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Sorry about that, Tom.
Hope you get some good input, and soon: would hate to see NASA have to delay a flight! ![]()
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Rochelle . . I've lost my mind ... and I don't miss it! LIFE HAS NO REMOTE -- GET UP AND CHANGE IT YOURSELF! |
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#3 | |||
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Senior Member
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Read the 'stickies' at the top of the titles page and go to the
links suggested that are of interest to you. Also, there's other sites for PN'ers - www.npnc.org & http://www.neuropathy.org just to name two.
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Bob B Last edited by nide44; 06-11-2008 at 08:21 AM. |
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"Thanks for this!" says: | sassy (06-10-2008) |
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#4 | |||
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Wisest Elder Ever
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I would evaluate your Vitamin B12 status.
Some people with very low B12 present and are diagnosed with MS by mistake. They can appear similar. Japan has published papers using extremely high doses of B12 to treat MS over there. They used about 40 milligrams in those studies, and I would not suggest that to you without supervision. But these papers are examples of other work: http://www.ncbi.nlm.nih.gov/pubmed/1...ubmed_RVDocSum http://www.ncbi.nlm.nih.gov/pubmed/1...ubmed_RVDocSum http://www.ithyroid.com/multiple_sclerosis.htm Secondly, I'd read up about gluten intolerance. There have been posters in the past here and elsewhere who were diagnosed MS who were really reacting to gliadin in the body. Our gluten forum here has some very excellent references in the stickies.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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#5 | |||
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Member
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Sorry to hear this Tom. I know you have felt that your MS has been kind to you and I hope this is just a minor setback.
Here's a site I found. http://www.mayoclinic.com/health/per...opathy/DS00131
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If someone listens, or stretches out a hand, or whispers a kind word of encouragement, or attempts to understand a lonely person, extraordinary things begin to happen. --Loretta Girzaitis Trust that your abilities are stronger than your disabilities - Maxene Kupperman-Guinals |
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#6 | ||
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Magnate
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--I highly recommend the Liza Jane spreadsheets:
www.lizajane.org These were put together as comprehensive listing of tests that can be considered for neurological symptoms of various kinds. The spreadhseet format allows one to track results over time and look for patterns--and it also can suggest tests to physicians that they may not otherwise consider. Can you tell us more about your situation? I'm assuming if they once told you that MS was a possibility they've found some evidence of demyelination on MRI, or abnormal protein in through lumbar puncture, but these can be present in other conditions. What has led to the current diagnosis? |
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