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-   -   Anyone heard on Erythromelalgia? (https://www.neurotalk.org/peripheral-neuropathy/47659-heard-erythromelalgia.html)

Silverlady 06-11-2008 09:10 AM

Tina..
 
It doesn't sound as if it is Raynauds.

Billye

TinaLou 06-11-2008 11:28 AM

I am trying the aspirin therapy. He said it should work pretty much immediately but haven't seen relief yet after 3 doses of 650mg. I'm doing research but not a lot of different info--mostly the same stuff.

never taken any of those meds though.

Thanks & God Bless,
T

TinaLou 06-11-2008 11:31 AM

No this is not what I have --it only come up when I have a great deal of stress and then goes away---it itches really bad.

Thanks & God Bless!

T

shiney sue 06-11-2008 01:25 PM

All
 
That asprin would have me spitting up blood,but give it a try and good luck
to you,this has been interesting..Mel this is a compliment maybe it's because,
you lost the weight ,which is great initself.I'm proud of me as well,we are hot,without a rash. Hugs to all Sue

TinaLou 06-12-2008 01:35 PM

Quote:

Originally Posted by shiney sue (Post 298554)
That asprin would have me spitting up blood,but give it a try and good luck
to you,this has been interesting..Mel this is a compliment maybe it's because,
you lost the weight ,which is great initself.I'm proud of me as well,we are hot,without a rash. Hugs to all Sue





I'm starting to have quite an upset stomach--but no relief from the symptoms--he said if it helps we "may" have a diagnosis----I recorded the whole visit on personal recorder as to not miss anything because my memory is scarce as well. but my feelings are not. I'm really scared of taking so aspirin but I'm gonna try it--just to see if he may be on to something. I haven't haven't had the rash in about 2 months--PRAISE GOD!! Every little thing helps!!

Thanks so much & God Bless!!

T:hug:

TinaLou 06-12-2008 01:48 PM

Quote:

Originally Posted by Silverlady (Post 298304)
It doesn't sound as if it is Raynauds.

Billye

I don't think so either -- the upper half sounds EM but the other symptoms I have are totally different. I feel like I'm in a whirlwind--each day is different!!
Today I can barely see the words on the screen---but the Optho sd I have perfect vision---even though I have a huge blank spot inmy right eye that I can see and feel----made me feel loke an idiot--said I could only do one of the two ---see it or feel it!!! I do both!!!!!!!!!!! Wanted me to come back for neuro tests---I said not coming back to him for anything cause his "bedside" manner stinks!!! Never heard a word. :ranting:

Anyways let me get off this :deadhorsebeat:

Thanks and God Bless Always!!

T

DejaVu 06-12-2008 01:55 PM

Tina, this sounds....
 
so very uncomfortable!:eek:

All of it!

I hope you have someone to "follow up" with on sorting this all out?

Please continue to take good care!:hug:

mrsD 06-12-2008 02:16 PM

AlkaSeltzer...
 
The aspirin in AlkaSeltzer is easier to tolerate.
It is dissolved and does not hurt the stomach like tablets do.

Also the bicarb in it helps with pH issues, and blocks histamine
attachment to the histamine receptors.

If you use regular aspirin...use the enteric coated kind like
Ecotrin...but still I'd suggest AlkaSeltzer (original formula)

Another thing that causes flushing is serotonin release.
If you are on an SSRI for depression/pain, or have an organic
reason for excess serotonin release, you could have that rash.

Hidden tumors in the GI tract called Carcinoids, release serotonin intermittently (sometimes there is wheezing or diarrhea with it but not always), or a hidden lung tumor will also release serotonin. These things should be ruled out as well.

DejaVu 06-12-2008 02:42 PM

Tina, check this out....
 
I had seen a post in another forum on chlorine (I think you had written it) which has just reminded me of recent problems people are reporting with all kinds of "odd" chronic (and intermittent) rashes and actual "burns," as well.

This may not apply to you, but just incase... do you use municipal water and, if so, is your water supply treated with "chloramine?":confused:

Please see this: www.chloramine.org

I'd urge anyone with a public water supply to take a moment to look at this site. It is an easy read and lots of pictures, too! It has some important information for those actually exposed thorugh their water supply.

Mrsd: Great information above! I always enjoy reading your many insights!:D

Hope you are feeling better, Tina.

TinaLou 06-12-2008 04:12 PM

Quote:

Originally Posted by Silverlady (Post 298304)
It doesn't sound as if it is Raynauds.

Billye

Quote:

Originally Posted by DejaVu (Post 299401)
so very uncomfortable!:eek:

All of it!

I hope you have someone to "follow up" with on sorting this all out?

Please continue to take good care!:hug:

I am seeing a specialist at Emory University--just seems my symptoms have stumped him!! He is researching....and seems very empathetic and made feel very comfortable and that was very interested in what I have going on.


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