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Old 06-10-2008, 09:43 PM #1
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TinaLou TinaLou is offline
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Join Date: Jun 2008
Posts: 28
15 yr Member
TinaLou TinaLou is offline
Junior Member
TinaLou's Avatar
 
Join Date: Jun 2008
Posts: 28
15 yr Member
Post Anyone heard on Erythromelalgia?

Hi!

I posted all of my symptoms the other day--I have had many blood test including autoimmune--which showed only slightly low feritin serum level.
Had MRI's, skin biopsy--could not rule out or pinpoint one thing except granuloma agular(sp?) NOT!!!!it comes and goes and does not even resemble!

Went to specialist at Emory University in Atlanta today--he said--he is not sure what I have.....but he believes that is a rare disease (maybe genetic)
called Erythromelalgia. Said along with all of the other meds I'm taking he wants me to take 2 regular aspirin 3 times per day and call in 1 week and let him know how I feel. He said he will be doing some research on it and all of my symptoms as well.

Has anyone had this? It is so painful.

Thanks,
Tinalou

Last edited by TinaLou; 06-10-2008 at 10:54 PM.
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