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10-26-2006, 04:22 PM
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Magnate
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--that was posted in the forum feedback section, but I think is relevant here:
http://www.newscientist.com/channel/...st-advice.html I'll also copy here what I wrote in response there: I'll tell you what annoyed me in this enlightening article--the fact that Neuropathy Association would not reveal how much of its funding comes from pharma companies--the line is "The public relations consultant for the Neuropathy Association told New Scientist that the information was 'proprietary', and wouldn't discuss the group's guidelines on receiving donations". As someone who's been active in the Neuropathy Association for a long time, and has been critical of its management and even its web presence--it's no accident that more people post on this site's, and on Braintalk's, peripheral neuropathy boards than have ever posted at Association (their board is hard to navigate)--you can be sure they'll be getting a call from me, followed by an e-mail, followed by a letter. In these days of hidden agendas, it's vitally improtant that a non-profit advocacy organization come clean as regards its income sources, and operate in the sunlight. |
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An interesting article--
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