Originally Posted by lynxgal

Hi. It was suggested that I visit this board. I have done a lot of research on my sx and have wondering about MS and CIDP. Finally starting to get my doctors to take me seriously!



Short History:

I had an onset of sensory symptoms, brain quakes/zaps and severe episodic vertigo 15 months ago that lasted about 3 months. Some of my symptoms never went away just became mild. I have had 2 more episodes with the last episode I have numbness and loss of vibration sensation in my right foot for a couple of months. The numbness is subsiding and the vibration sensation is coming back. Other symptoms: muscle twitching and spasms mostly from my mid body down however recently they have started in my arms and neck.

I have had 1 MRI w/o contrast(over a year ago). 3 very small non specific "white spots" were found between the junction of the grey and white matter (possibly angiopathic in nature). All blood tests are normal, diabetes, thyroid, vit. & mineral deficiencies have been ruled out. ENG/VNG show bilateral vestibular dysfunction of unknown causes.

I have recently had a NCV done on my right foot and leg which was abnormal. I don’t have the final report yet but I was told that there is slowing of velocity throughout the lower leg as well as conduction block in several nerves. They tested my right arm and noted similar results and polyneuropathy was mentioned. The left leg was not tested due to peroneal nerve damage and drop foot due to MVA 20 years ago.

The following are new sx over the last week:

On my right foot I can move my big toe up but not down. This is the one that is still numb underneath. I can move the little toe just fine. The banding feeling around the 2nd and 3rd toe has increased to include the 4th toe. I can't move toes 2,3 & 4 up at all. Approximately 6 inches of both forearms feel tight on top. Feels kind of like very light tingling.

If this sounds familiar to anyone I would love to hear from you.