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Old 07-20-2008, 10:43 PM #1
diagnonsense diagnonsense is offline
Junior Member
 
Join Date: Jul 2008
Posts: 90
15 yr Member
diagnonsense diagnonsense is offline
Junior Member
 
Join Date: Jul 2008
Posts: 90
15 yr Member
Default I have questions galore. (sorry)

Ok.
Soo, I had noticed that a lot of people on here are talking about pain. And they are on medications for their neuropathies for it, etc.
(Neurontin, Topamax)
Now, I have been trying to figure out if there is some certain type of neuropathy that is more apt to be more painful, thus causing the need for these meds?

Cause I have a neuropathy.. and thank the lord, I am not in pain. (which is why I am curious)


Another thing..
I was reading something about small and large fiber neuropathies. And testing.
It appears to me that persons with small fiber often get "stuck" with idopathic as a diagnosis unless they figure out that they have diabetes or something.

Since I had an abnormal EMG/NCV does that mean that I have a large fiber abnormality?
I am honestly terrified that I will go home from Mayo with an "idiopathic" diagnosis.. I don't think I could handle that.
Its hard enough that I have poor functioning of my body and my Dr.'s won't treat me for anything, cause they don't know whats wrong, and I had to wait MONTHS to get into Mayo.
If I have to go on like this.. .. I just can't do it.

Well, thats only 2 questions I guess.
Oh, and why doesn't anyone use the chatroom?
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