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Old 07-24-2008, 10:51 AM #3
dahlek dahlek is offline
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Join Date: Aug 2006
Location: metro DC suburbs
Posts: 2,576
15 yr Member
dahlek dahlek is offline
Magnate
 
Join Date: Aug 2006
Location: metro DC suburbs
Posts: 2,576
15 yr Member
Default Welcome Susie and you have asked good questions....

First off to find out LOTS about IVIG look at this site: http://www.igliving.com/
They can help demystify the insurance issues if needed, but first let your Doctor work things out...You won't get it if you don't get pre-clearance.
Another good source about IVIG is this site: http://www.cidpinfo.com/treatment_op...apy/index.aspx While this deals with CIDP, it does also deal with the actions/methods thru which IVIG works.
As for getting IVIG either at home, in an infusion clinic or in a hospital, this site is good to tell you what a nurse should do and be looking for in the infusion process:
http://www.resourcenurse.com/feature_ivig.html
I 'had' another site, but can't find it now, but this will give you the 'basics'.
As for IVIG working.....some stats say it works 60% of the time, others say 30-50% and variations depend on the brands, length/quantity of infusions and also how long it took from onset to diagnosis/treatment. Obviously the longer for the latter the longer it mite take to kick in.
For me I'd started on a four day infusion where by the end of the first day I did feel less tightness and some less pain. On day four I felt great! It doesn't last tho, and I usually can't wait for my next infusion.... I have only had one truly bad infusion experience [in a hospital BTW] in over four years of infusions... For me, it's the difference between being able to walk around on my own steam or the less desirable alternatives.
Insurance does cover this if it is allowed in your plan. But you must fork over some $$ until you meet your catastrophic deductable. Then it's what I call 'home free'. My own infusions run over $5K per month, and it varies by plan and region. So be prepared and do not be too shocked.

Please don't be shy about asking questions about it all. Also use that blue bar at the top of the forum and use the 'search feature'...type in IVIG and click on all the previous threads on it. I truly hope it helps you and that this helps as well! - j 's
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