hi i have been on neurontin for 8 yrs now & am on 1800, they do well for me except for all the weight gain. have not tried lyrica but am keeping that in mind. i also have 600 tegretol retard, 2 amytryptaline at night also i am on 10 mgs methadone. i have recently started using versitis patches but so far not having much luck with them mainly as i can`t get them to stick as they`r to go on my head & face. although i have heard of wonderful results from the patches.
it`s very difficult getting the meds that are right for us & of course
"what does for one doesnt do for us all "
just put my little piece in for what it`s worth
best wishes sophia

been on lyrica, didnt do anything for my nerve pain...not dxed with anything but have pins needles tingling pain for years....lyrica only gave me side effects...didnt help with sxs...

now doing neurontin...it is helping...I feel the numbness feeling I get wiht pins and needles but nto getting the pins needles yeahhhhh

I know there is a note on my meds..neurontin that says to alway let drs, dentists, and any medical know that I am on this medicine....

hugsss,sarah

Thanks Dan. The issue is for me since I am young and this is going to be probably for the rest of my life they don't want me on certain meds and why they want an implant. I have cruddy insurance so I usually ask for samples too from my docs if they have them. I also have had no luck with meds like none.
I think a huge frustration with this is what works for one may not for another. Also weighing the long term issues that come with some meds vs what is going on now. I know last year at my bed rest crying pain I just wanted relief and could care less about addiction so on.
To the poster hae you went to a pain managment doc? They may help more with a long term plan that is what I have found

Daniella - My GP did refer me to a pain med doc. Apparently, I was sent to the "wrong kind" as he said his speciality was injections. Although I have no neck or back pain he ordered an MRI of the spine. (I have also had MRIs of the brain and neck). He said if the issue was in my spine then he may be able to help. So...I need to start another search for a pain specialist. How do I know if I have the right kind of pain specialist?

Hi. I just saw my 4th pain doc in a year. Anyhow I have seen 2 at Cleveland Clinic and 2 at Ucla/Marina del ray. All were anastesologist that were pain docs. I have pn but also something similar to rsd. So I am a little different then most here. While you are getting an mri of the spine if you have not gotten one may be ask for one of the brain too. My spine mri they did the brain at the same time. At that time I didn't have any neck or back issues either. May be you can search on here for pain management docs in your area. I guess for myself I would look for an anastesolgist one though cause I think some pain docs are not.I am sorry where is your piain or is to wide spread? Hang in there.

[QUOTE=daniella;341766]Hi. I just saw my 4th pain doc in a year. Anyhow I have seen 2 at Cleveland Clinic and 2 at Ucla/Marina del ray. All were anastesologist that were pain docs. I have pn but also something similar to rsd. So I am a little different then most here. While you are getting an mri of the spine if you have not gotten one may be ask for one of the brain too. My spine mri they did the brain at the same time. At that time I didn't have any neck or back issues either. May be you can search on here for pain management docs in your area. I guess for myself I would look for an anastesolgist one though cause I think some pain docs are not.I am sorry where is your piain or is to wide spread? Hang in there.[/QUOTE


Thanks for the information.

My pain, so far, has just been the horrible burning which is in both feet, in the shinbone area of both legs, both hands and ower arms. I really didn't think was needed the pain doc in this early stage but my GP had some concerns with the neuro doc and the fact that he works out of 3 offices. When you call his office to get info, ask about meds, indicate that something isn't working, it takes several days to get a call back from him or his nurse.

On both neurontin and lyrica I had weight gain and strange mental issues. Sort of a "high"...too high! Also I was forgetting names of people I know and such. The trade off wasn't worth it for me. But who knows, may have to give it a go when (if) the pain gets worse.

TJ

I've been on Lyrica for eight months, it works great now but took quite a while to figure out the right dosage. It had absolutely no effect until I reached a total of 300 mg a day. I've tried splitting it up into twice a day, three and four using 75 mg caps. What finally worked best for me was three times a day for a total of 450 mg. I also take Tramadol as needed and have found a Tramadol/Lyrica "cocktail" to be extremely effective for my "idiopathic" neuropathy.
Luckily with my insurance copay it's only $40/month no matter how much I need.
Only side effect has been a bit of drowsiness and sometimes not being able to find Q on my keyboard!

I'm with you about the constant pain. Mine however, is slightly better in the morning, and gets progressively worse all day.

What I can say about Lyrica is that I am on both Lyrica and Gabapentin (generic Neurontin). The only reason to switch to the Lyrica or add it is if the other drug you are on is not working well enough. Otherwise, you are being managed fine, and the drug change is unnecessary.

This is sort of a side question, but how high can you go on Lyrica?