FAQ/Help |
Calendar |
Search |
Today's Posts |
|
08-05-2008, 04:58 PM | #1 | |||
|
||||
Member
|
Hi, as many of you know I'm a long-time forum member, but, doing well, have been here less often of late. (Though I am happy to say lizajane.org is doing well!).
I've been strugglng with sinus infection which was successfully treated for February through May, and then returned in June. With it I've developed new neuropathy symptoms. My skin, everywhere, gets pricks and an itchiness, and there are patches which are chronically worse than other places. This is not one of those symmetrical things that I used to have. I never had small fiber involvement before, not like this. I saw my neuro yesterday, and found that I had lost my ankle jerks, my knee jerks were down, and I've lost my arm reflexes. All of this fits what I'm experiencing. So, even though I was improving over 8 years, there's a setback here. I'm trying to get an appt with Dr Latov, to see if he thinks IVIG can help. But that might not be so easy. Oy.
__________________
LizaJane . --- LYME neuropathy diagnosed in 2009; considered "idiopathic" neuropathy 1996 - 2009 ---s/p laminectomy and fusion L3/4/5 Feb 2006 for a synovial spinal cyst |
|||
Reply With Quote |
08-05-2008, 07:23 PM | #2 | |||
|
||||
Senior Member
|
Liza Jane,
This is Summer and some folks are on sabbatical, vacation, sick, going thru medical tests etc. Don't worry about no one answering if that happens. You have given so much to this group, we'll all be here for you. I'm anxious for you to go back to Mayo in the neuro dept. Is that possible? Billye
__________________
*Silverlady* |
|||
Reply With Quote |
"Thanks for this!" says: | LizaJane (08-09-2008) |
08-05-2008, 09:44 PM | #3 | ||
|
|||
Member
|
Liza Jane -
I'm a new poster at this site....as my neuropathy just began 3 months ago. I'm sorry you are experiencing this setback and hope you get through it soon. I must say that the information you provide is wonderful and I use each post to help with "treating" my symptons, understanding what the docs say, what questions to ask... Thanks to all of you who take the time to answer our questions and share your trials and tribulations!! Leslie |
||
Reply With Quote |
"Thanks for this!" says: | LizaJane (08-09-2008) |
08-05-2008, 10:28 PM | #4 | ||
|
|||
Senior Member
|
Hi Liza, could it possibly have anything to do with the medication you took for the sinus problem ?
Brian |
||
Reply With Quote |
"Thanks for this!" says: | LizaJane (08-09-2008) |
08-05-2008, 10:36 PM | #5 | |||
|
||||
In Memorium
|
LJ,
Just as Brian said - was thinking same thing... weren't you on several different types of anti-biotics at the same time? along with having the infection - for months? My PN went from tolerable to severe in 6 months during which time I was on oral vancomycin and flagyl together and very sick with C-difficile.... the docs werent sure that it was the meds, or the infection, or the combo of both the finished off the nerves.... Did you get tested for any auto-immune markers? Hopefully it will let up... if auto-immune the IVIG would be worth a try.... Hang in there... |
|||
Reply With Quote |
"Thanks for this!" says: | LizaJane (08-09-2008) |
08-06-2008, 08:06 AM | #6 | |||
|
||||
Senior Member
|
Lizajane,
Very sorry you've had a setback. You've given so much to all of us, you don't deserve it. Hope things resolve real soon.
__________________
Bob B |
|||
Reply With Quote |
"Thanks for this!" says: | LizaJane (08-09-2008) |
08-06-2008, 09:51 AM | #7 | ||
|
|||
Magnate
|
I am so sorry. I can relate to flare ups and I don't get them especially when I don't do anything different. I wish this was like a normal thing where it gets better and then gone not the ups and downs and all arounds.I wish I had more to offer just you are in my thoughts and I hope you find something and someone to help you
|
||
Reply With Quote |
"Thanks for this!" says: | LizaJane (08-09-2008) |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
When does the "remitting" part of "RRMS" start? | Multiple Sclerosis | |||
"The Bipolar Handbook" & "Horror Movie Hallucinations" | Bipolar Disorder | |||
Nitration in neurodegeneration: deciphering the "Hows" "nYs". | Parkinson's Disease | |||
"Instant Karma" - the Voices of Apathy -"Coulter and Limbaugh" | Parkinson's Disease | |||
"Inside Edition" -using our "CHAMPION" film | Parkinson's Disease |