NeuroTalk Support Groups - destined to be undiagnosed?

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Peripheral Neuropathy (https://www.neurotalk.org/peripheral-neuropathy/)

- - destined to be undiagnosed? (https://www.neurotalk.org/peripheral-neuropathy/52560-destined-undiagnosed.html)

Got to www.lizajane.org (.com?) for a complete list of all
the tests possible for PN.
If the doc doesn't know which tests to order, go down the list.

Mystery Diagnosis

Quote:

Originally Posted by Fran E (Post 352517)

YOu don't know anything more about that show, do you? It sounds interesting.....

Kasobie : "Mystery Diagnosis is a repeating show on one of the Discovery Channels (probably Discovery Health) and each show covers different cases. They are excellent (and I am in a medical field) but they show how frustrating it can be if you have a doctor not highly trained, or too busy, or not humble enough to find you a referral to the right specialist. Go to a major medical center, if possible, one at a medical school, where some of the top professors will be. The solutions are found by the very motivated doctor who spends the extra time to look for the exception. But remember THERE ARE NOT ALWAYS ANSWERS, just in case you don't get one, keep doing your best. k

Quote:

Originally Posted by Leslie (Post 357316)

These drs. make me so stinking mad....why won't they take the time to figure out what is wrong with us?? My doc said that there are 100 possible causes for PN and we may never know the cause. So, I said "well let's start testing"... I have paid into an insurance plan for 25 years (this is the first time I have been sick) so it's high time I got my moneys worth.

So, we'll see just how far my doc will go...probably not much farther.

It is important to understand the "cause"

1) if a toxin --you can remove it from your environment so further damage does not result

2) if autoimmune-- you can be treated with IVIG or immunosuppressants

3) if a drug like statins/fluroquinolone antibiotics you need to stop the drug

4) if due to mito damage (some drugs cause this--AIDs drugs and chemo), acetyl carnitine may reverse it.

5) Gluten intolerance? --go gluten free

6) diabetic, prediabetic?-- diet and treatment may reverse it

7) nutritional deficiencies? --B12, thiamine, omega 3s, etc will reverse it.

8) thyroid disease-- can be treated

9) post viral syndromes

These are just the most common. Hereditary issues also can be present as well as the difficult amyloidosis.