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Old 09-11-2008, 08:33 AM #11
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If you've been taking 1000-2000mcg B12, daily, the last test scores of 1200 are about right-what would be expected with B12 supplementation.
450 is a bit low. Bottom line is now about 600. Anything under that is suspect for deficiency, and possible cause..... of PN.
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Old 09-12-2008, 06:55 PM #12
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Quote:
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If you've been taking 1000-2000mcg B12, daily, the last test scores of 1200 are about right-what would be expected with B12 supplementation.
450 is a bit low. Bottom line is now about 600. Anything under that is suspect for deficiency, and possible cause..... of PN.
My last B-12 level test showed me having a B-12 level of 2000. And my doctor's office didn't seem to think that was too high because no one called me up on that.

Ever since I began the Methyl B-12, I have had virtually no burning, no pins and needles, NOTHING.

I would not stop my B-12 for ANYTHING!!!

melody
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Old 09-16-2008, 06:42 PM #13
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High levels of B-6 can cause pins and needles as described which is neuropathy. B-12 has no known toxic level or sides that I've been able to find.
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Old 09-17-2008, 09:43 AM #14
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Its my understanding that it takes a long while for the B12 levels to come down after stopping a B12 suppliment.
The liver stores B12 for quite a while.
What is not regularly used is excreted thru the urine, similar to excess Vit C dosages.
My doc has to note to the lab, that I take a B12 suppliment, or my tests come back as a 'flag' that my levels are 'abnormally' high.
As a matter of fact, my levels, while taking B12 suppliment-
are between 1200 & 1500. Not excessively high, but higher than 'normal'.
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Old 09-17-2008, 09:51 AM #15
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Lightbulb I have seen on the net...

a while ago a post from a lab tech...who claimed that the instruments that test B12 cannot read above 2000.

If that is true, then, a reading of 2000 may not be accurate.
It may in truth be higher.

I really must say, I would NOT discontinue B12 just because of a reading of 1100 (when you know you are taking supplements).

A high reading without supplements may indicate some disease state, and that is all that upper range is good for IMO.
There has never been any reports of B12 toxicity (except for the rare cyano folks who cannot process the cyanide portion of the synthetic version).
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Old 09-17-2008, 01:21 PM #16
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Quote:
Originally Posted by nide44 View Post
Its my understanding that it takes a long while for the B12 levels to come down after stopping a B12 suppliment.
The liver stores B12 for quite a while.
What is not regularly used is excreted thru the urine, similar to excess Vit C dosages.
My doc has to note to the lab, that I take a B12 suppliment, or my tests come back as a 'flag' that my levels are 'abnormally' high.
As a matter of fact, my levels, while taking B12 suppliment-
are between 1200 & 1500. Not excessively high, but higher than 'normal'.
And who is it, Rose? That has the B-12 site? States that people with PN should have higher levels of B-12...cause for many of us what's a normal healthy level is higher than what is considered "normal values" for people without PN.
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Old 09-18-2008, 09:54 AM #17
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Mrs D can you tell me what type of disease could be a sign of high b12 numbers if not on supplements for that and ones diet does not contain huge amount of animal products?Or is that unknown or hard to say?
Random on tlc they have medical mysteries there was a lady who was ill for 10 years and no one ever tested her for b12. Her life had stopped from the nerve issues she was having. Finally she saw a doc on tv who dx her with b12and anemia I think. Even if she had taken the oral it would not absorb so she needed injections. With in a few weeks she felt like a new person. She will always have some lack of balance from the years of being without.
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Old 09-18-2008, 10:04 AM #18
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Lightbulb

People with leukemia or other blood disorders, liver problems or massive intestinal bacteria overgrowth may show elevated
B12 levels, when NO supplements are being used.

It is not common.
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Old 10-10-2008, 06:39 PM #19
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I've learned a lot about B12 deficiency during the past few months so I thought I'd just add a tidbit here that I came across....info on this subject is hard to find.

Your body is very efficient at storing B12, as long as there is no medical issue preventing from doing so. The amount of B12 needed each day is actually quite low, and if you stopped getting any it would take somewhere around 4 years for your body to run out. That's for someone with normal levels and no medical interference.

One year ago I became extremely ill after months of going downhill. I won't get into the hell I entered, but it wasn't until it had reached a very dangerous stage that it was finally discovered that my B12 level was 96. Yes, 96. At the same time, it was also discovered that my iron level was just as dangerously low and I also had a vitamin D deficiency. Yep, it was a pretty ugly situation. I'm much better now, but still in recovery.
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Old 11-22-2008, 12:18 AM #20
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Frown low b12

Low b12 is awful to live with. Mine currently is 83. Mine is due to intestinal problems that do not alow me to absorb b12. I am allergic to the soloution they mix with the b12 injections and we just lost the battle with the insurance company to pay for the b12 nasal spray.

I am too exhausted to be frustrated...The symptoms are incredible...chest pain, shortness of breath, focusing, aching, and these are just to mention a few...

Loosing the b12 battle!!
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