260 is definitely too low-- that is if your lab scales are the same as the rest of the world.

I know the discussion about B12. Unfortunately in my hospital there is a minimum level of 150 and I am 'lots' above that. I already thought by myself, when they don't find a cause for my sfn, I will ask/beg for a B12 treatment. Here the problem is, that your doctor has to agree with you for getting the injections, you cannot buy them by yourself. Or you have to be rich and I am not

you don't need injections. You can do oral by yourself.

Many non-American people visit these boards and self medicate.

iherb.com ships to Netherlands. You may have an import quota,
because of Codex. That you would have to research a bit.

http://www.iherb.com/info/shipping/International.aspx

Oral daily has been shown as effective as injectable in medical studies.

I hate to say this, but a cut off of 150 in your country is archaic.
http://www.aafp.org/afp/20030301/979.html
Given that B12 is benign and has little or NO potential for causing harm, hesitating to use it
when frank neurological symptoms are present, is a poor decision, IMO.

Thanks MELODYL! I am healed enough that I can do most everything I always have. I just deal w the pain. I work as a designer in a flower shop. Everyone thinks its a fu fu job. Most people haven't a clue how physcial this job is. Lots of lifting, lugging and twisting motions. Fill a 5 gallon bucket up about halfway and lug that around w you all day long. In the summer, I do that, and I am a landscape designer on the side. Also all physcial work. (love it all tho.) I'm a very outdoorsy (that a word?!) type lady. I have to stay moving to deal with body. I have a question for anyone that might have an answer: Has anyone been on cyanoB12 for years, healed pretty much, and then changed to MethylB12? Did you reverse to old symptoms? Did you feel better? How long did it take before you felt anything? Any reactions, good or bad? I'm very curious, as I don't see this discussed so far. Still reading and asking questions at this point.

I don't understand this question.
Cyano B12 is not biologically active....it is converted to methyl B12 in your body if all is working as it should.(there are 4 steps that your body has to do to get to the active methyl, and some people have genetic failures along the way)

There will be NO going BACK only forward. Just make sure you take enough oral methyl B12 and on an empty stomach.
Melody chooses to remain on 5mg a day. Some people once they are healing and doing well, can reduce to 1mg a day.
Not all that you take orally is absorbed. You need high doses to get the few micrograms passively absorbed in the small intestine without intrinsic factor.

Hi Mrs. D.

Actually, I'm afraid to take any less. I'm doing just fine on the 5000 (especially when you find out that you don't absorb 5000 but only a fraction of this, right??). Last time they tested me for intrinsic factor I tested fine.

When I started on the Methy B-12, I started with 1000. I knew after one week that the 5000 would do be much better.

I even went down to 3000 after a few months (a cheaper brand also), thinking, "Well, I'll save some money, I don't need 5000, blah blah"

But I recognized the difference in my body IMMEDIATELY. After I finished that bottle of the 3000, I went back to Jarrows and to the 5000.

As long as there are no ill affects from this dosage (and from what i've reading, there aren't any), I'll continue to take what I'm taking. I now have Alan on it as well. I mean, why not? We don't eat red meat and he needs the B-12.

I get (very occasionaly), the burning, (when the temperature changes from cold to warm, or vice versa. That's also when Alan walks in and says "do your feet burn?" and I look at him and I say "just a bit, look at what it's doing outside".

But otherwise, I'm fine and I want to continue to be fine.

As for the energy, well, what can I tell you.

This morning, after coming back from my local breakfast place, I made homemade yogurt, then I took all 9 of my mason jars and grew a whole new bunch of sprouts ( I use home-made green tea instead of water), I harvested the sprouts I've been growing, I de-hulled them over my kitchen sink. Busy busy morning, AND I LOVE THIS!!! Keeps my mind occupied.

I made a batch of blueberry muffins (vegan). Just took them out of the oven.

I'm about to make a spinach quiche.

I don't think I'd be able to be so productive if I didn't use the Methyl B-12.

I have friends my age who are sitting down and can't move.

I'd rather move!!!

lol

Oh, I had been using cheesecloth to strain the sprouts in my wide mouth mason jars. I went online to see how much those strainer lids cost. They can cost up to $4.95 for each strainer lid. I actually made my own sprouting jar stainer inserts from strainers that I had lying around (I'm like McGuyver, I like to make stuff). They work just fine and I saved BIG moolah doing this.

Melody (the sprout-lady)

Hey all, well I have neuropathy, nerve tingling and numbness pain for years.. not dxed with anything, watched for MS.

anyhow although B12 tests looked good, I had bought some sublingual liquid B complex to try each day. Forgot after a few days, but just thought of it now that I found this thread. It says contains 1200mcg of B12.

Just curious how long you guys had been on B12 before noticing any improvements? are you on other regular dr meds too? I am on neurontin, and occasionally prednisone.

hugss and thanks for info, wasnt sure if that is the kind of B12 to take but I had bought it, so took some today and might try daily for a while see if notice any difference. hugss,sarah

I'll rephrase the question. Has anyone out there been suffering B12 deficiency, put on injections of cyanocobalamin. Been on these injections for a few years. Been helped by them and then changed to MethylB12 injections or sublinguals. Did you have any set backs or reactions?

To ru218, The doctor started me on l inj. of cyanoB12 (that I'm still on) lx a week, 1cc. I was on that schedule for almost a year. These doctors!!! I didn't know that much back then. I've only recently gotten on line to do research, and am learning a lot. I am working on getting my neuro doctor up to speed too. He's been great. My injections are only lx a month now. I also do sublinguals. I've looked around this area, and nobody sells the MethylB12 in any form. Neuro doc. should agree to those injections and I can get sublinguals on line. Thanks for the nice words. I appreciate it.

Why would you have a setback or reaction. When a person takes cyanocobalimin, their body changes this to Methylcobalimin.

so when a person switches from cyanocobalimin to methyl, well, they are getting more of the stuff they should have been getting in the first place.

I have NEVER heard of anyone suffering any setbacks or anything, from simply switching from Cyanocobalimin to Methyl B-12.

Your body does the changing. So if a person is only taking cyanocobalimin, it has to be converted (to Methyl) for it to be doing any good.

So you have been getting injections of cyano, right? This means that your body is taking the cyano and converting it to methyl.

If you take the stuff that I take, (Jarrows methyl b-12), all that would mean is that the methyl would do what it is supposed to do. It won't have to be converted.

It's a GOOD THING!!!

I wonder if your doctor could give you injections of Methyl b-12.

I don't need to do this. I have GREAT SUCCESS with just taking the oral pill first thing in the a.m.

I only wish we knew this YEARS ago, when my husband first got PN. He's not diabetic, but believe me, if I KNEW THEN, what I KNOW NOW!!! he might not have had all those years of pain. At least he now takes it.

Melody