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Old 08-15-2008, 05:28 PM #1
savannah savannah is offline
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Join Date: Jan 2008
Posts: 58
15 yr Member
savannah savannah is offline
Junior Member
 
Join Date: Jan 2008
Posts: 58
15 yr Member
Default On my own , doctors give up!

Briefly, I have small fiber neuropathy and just this week had autonomic testing that was normal. This was done by a PN neurologist trained at Mayo.This is my 3rd neuro.
For the last ten days I have been so extremely fatigued that I don't feel safe driving and have been unable to work(self employed). I have had episodes of this exhaustion before my first symptoms of Pn a year ago. However it was usually one day of exhaustion but I'm now on my 10th day of not functioning. On bad days I don't have the energy to use the computer so I guess I'm slightly better now that I can sit in a chair but that's it.
The neurologist said the fatigue I am experiencing is NOT a symptom of small fiber neuropathy and all my blood work for auto-immune disorders have come back negative.
My internist (15years) now says there is nothing she can do for me. so I'm on my own with this, I don't know where to turn. Of course I'm angry at her but she also has tested for everything which has turned up normal. Great but why is it tough to leave the bed and do anything. I explain this is not depression, I like my life even with the pain. I never miss work.
So I'm offered a prescription for Ritilin. I guess to give me a lift so I can function. This scares me, taking drugs to mask my exhaustion. My body is saying I can't function. what will it do to me to over ride my body with this stimulant.
Scared and on my own.
What type of doctor should I try next?
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