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Old 04-15-2013, 10:27 PM #21
Mads Mads is offline
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Originally Posted by Joanne C View Post
I just joined tonight. Thank you all for the posts .I thought I was alone with the pain getting so much worse at night. It keeps me up late. The ONLY way I can sleep at all is to take the Tramadol.and usually I also need a Vicodin. My legs are very bad. I never take the same amount of Tramadol in a day. Right now, I am only taking it at bedtime. But in the beginning I took it four times a day. Then I cut back to twice a day.....at 10:00 AM and at bedtime. But, I have decided I really only need it to sleep. I have been on it for a couple years. If I don't take it I do not sleep and lay there until 4:00 AM exhausted..and that doesn't help me much the next day. BTW, I am post liver transplant and nerves can be severed in the process of opening you up. Again, thank you all for your help. Joanne C.

Hi everyone,

Im the same. After 'getting going' through the stiffness upon waking I feel easier in the morning then start to decline around 4pm. Its all downhill from there. Evenings are terrible. Especially bed time 9pm-12. Take heavy sleepers to knock me out but invariably wake due to pain. Stay strong everyone.

God bless x
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Old 04-15-2013, 10:30 PM #22
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Originally Posted by Joanne C View Post
I just joined tonight. Thank you all for the posts .I thought I was alone with the pain getting so much worse at night. It keeps me up late. The ONLY way I can sleep at all is to take the Tramadol.and usually I also need a Vicodin. My legs are very bad. I never take the same amount of Tramadol in a day. Right now, I am only taking it at bedtime. But in the beginning I took it four times a day. Then I cut back to twice a day.....at 10:00 AM and at bedtime. But, I have decided I really only need it to sleep. I have been on it for a couple years. If I don't take it I do not sleep and lay there until 4:00 AM exhausted..and that doesn't help me much the next day. BTW, I am post liver transplant and nerves can be severed in the process of opening you up. Again, thank you all for your help. Joanne C.
Hello Joanne. Welcome. Im still fairly new myself. Its such a relief to find others share the same symptoms and feelings isnt it.
God bless you x
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Old 04-16-2013, 06:29 AM #23
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Hello Joanne. Welcome. Im still fairly new myself. Its such a relief to find others share the same symptoms and feelings isnt it.
God bless you x
I found a discussion about EM at Dr. Cohen's website, about changes in redness and pain during the day, as evening approaches. He believes this has to do with internal biorhythms, in the body. (Cortisol release follows biorhythms too).

I put it on the other thread you have going,Mads, but I'll copy it here too, as others might find some help with the information in it, as well.

http://www.medicationsense.com/artic...iorhythms.html
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Old 04-16-2013, 01:16 PM #24
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I know my pain from SFN sure gets worse as the day goes on. Sounds like it's pretty common with a lot of people.

LillyLee
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Old 04-17-2013, 05:44 PM #25
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My pain is more at night as well, but for me the more active I stay the less the pain, so what I have been doing outside of the B12 is while I am sipping on my sleepytime tea I walk the floor then I am able to rest for about six hours, I start a new job next week part time so hope the more active I am the less the pain, at least I hope
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Old 04-17-2013, 09:12 PM #26
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My pain is more at night as well, but for me the more active I stay the less the pain, so what I have been doing outside of the B12 is while I am sipping on my sleepytime tea I walk the floor then I am able to rest for about six hours, I start a new job next week part time so hope the more active I am the less the pain, at least I hope
I too have SFN and definitely more pain in afternoon and at its worst at bedtime. I am now to the point where can only schedule meetings in the morning, as I know trying to sit upright in a meeting in the afternoon is not possible w the pain. In bed, I need to put a pillow under my legs to elevate my feet so they don't touch anything. I feel awful burning, and have just started to take ambien, as I simply cannot fall asleep. I take Tramadol all day long at this point. Reserve Vicodin for really bad days, and wait til 5, but I find it actually prevents sleep oddly
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Old 04-18-2013, 01:31 AM #27
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I'll repeat my Biofreeze suggestions for burning.

It really works well for me. Used everyday, it tends to reduce burning also, so there is less when you do have it.

You can get this easily now thru Amazon or iherb. Used to be a "secret" only chiros and PTs knew about. Now it is less expensive and more available generally.
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Old 04-18-2013, 10:49 AM #28
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I went to rheumatologist with suspected fibromyalgia. I told her about pain being worse later in day. She excluded fibromyalgia in her Dx for that reason. She said fibromyalgia
Is worse at beginning of day and gets better. Also, she felt I didn't have pain in enough areas of body for fibromyalgia.
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Old 04-18-2013, 06:00 PM #29
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Default Do you get a 'charly horse'?

My lower legs are effected with neuropaty. Only the front tingles during day then at night they burn (I don't really mind it in the day). But in the morn. at about 7:00 I get a charley horse. All the sudden I sorta' scream in pain & grab my leg/s. Yesterday when I touched my calf, it was rock hard. Then it gets better when I start moving/walking...till bedtime.
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Old 04-19-2013, 01:58 AM #30
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I have had PN and RSD for 6 years. For the first few years I would sleep a few hours at night but the past few I never sleep at night and if I sleep it is during the day but only a few hours max. I have tried basically every sleep med,anxiety med to help one fall asleep etc. I am going to start seeing pain doctor again so I am hoping to try something new. I know the pain is worse for me when I am still for too long. So when I lie down I feel like my legs where my condition is the worst got run over. Pain conditions impact everything in ones life. I am sorry others can relate.
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