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-   -   Idiopathic Peripheral Neuropathy (https://www.neurotalk.org/peripheral-neuropathy/55894-idiopathic-peripheral-neuropathy.html)

numbfoot 07-10-2015 07:06 PM

Quote:

Originally Posted by mrsD (Post 1154084)
Have you been to a hand specialist?

There are various disorders of the tendons and fascia of the hand.
A hand specialist may be able to help you more in this regard.

Thanks your reply.

No, havent seen a hand specialist.

The neuropathy in my hands is part of the ongoing which started in my feet.
My previous posts in this thread explain my journey to this point.

earlyboy 07-12-2015 08:51 PM

Earl
 
Quote:

Originally Posted by numbfoot (Post 384913)
Hi
I am a 55 yr old male who has been diagnosed with Idiopathic Peripheral Neuropathy. It started in my right forearm, and then progressed to my right shin, top of right foot and big toe. Once it started to effect the left hand side of my left foot I sought medical advice, but by the time I got to the neurologist I had it in my fingertips also. I was told that as it is Idiopathic, (having no known cause) there is no known cure, therefore no medication was prescribed. That was 12 months ago, since then the Neuropathy has taken over almost all of my right foot and progressed up to my right knee, fortunately no other areas have changed. While I am aware the effects of this condition vary between individuals, I am egger to hear from anyone who may be able to enlighten me on possible further progressions.

Do yourself a big favor and order "The Re Builder on line" My wife couldn't live without her lyrica three times a day. Now, she can't live without her ReBuilder. Her numbness, tingling, pain is just about gone. Get two storage containers, one for each foot. Add electrolyte solution and that's it. Get the pads. You can treat your hands also. Read up on it. It works.

hydropillow 07-13-2015 12:49 PM

Earlyboy is referring to an EMS TENS device.

numbfoot 07-14-2015 06:32 PM

I considered getting one of those.
My neurologist told me I would be wasting my money.
I did some research into it anyway.
Results were mixed, depending on what was causing the Neuropathy.
I would have gone ahead & got one if there had been any positive results from someone with the same problem as I have.
I also got the feeling a lot of the positive feedback was from people with a financial interest in the device.

earlyboy, could I ask the nature or cause of you wifes Neuropathy?

numbfoot 05-08-2020 09:57 PM

Ok so here we are five years further on and another update to my thread.
My symptoms had been fairly constant during that time with the main increase being in my hands.
I am still keeping reasonably fit with walks & bike riding.
However a new issue is developing and I'm a bit concerned where it may lead to.
A couple of weeks ago I noticed a tender spot halfway down my spine. Felt like an area was protruding out & was sore to lean against or lie on. After another week I noticed pain across my lower back, hips, sholders & neck. Thinking I may have caused it through over exertion, I did the usual exercises but it didn’t help.
The pain got bad enough to need pain killers just to get up & dressed in the mornings.
Was ok in bed for a while, just turning over was a mision.
But last night I had to take a pain killer just to get through.
I am only using Paracetamol atm which seems to do the trick.
One every four hrs allows me to do my normal things with managable pain.
I guess I should consult my GP re this but with the covid 19 thing & the lockdown, not all that easy.

caroline2 05-08-2020 10:10 PM

Well, no comment from you in 5 yrs...that's pretty good. Who knows what is going on. As we age and continue to be active, we end up with more wear and tear. I have that is for sure.. You don't mention your age Numbfoot.

agate 05-09-2020 01:25 AM

It sounds as if this pain is gradually getting worse. I hope you can get to a doctor before long. If you wear a mask and maybe protective gloves and maintain your social distance, you should be able to do that--though some doctors may not be seeing patients just now unless it's an emergency.

In the meantime, why not go easy on the exercise?

I've had quite a few problems with back pain requiring physical therapy. One thing I was always told was to stop doing the exercise if there was pain.

Atticus 05-09-2020 02:04 AM

Quote:

Originally Posted by numbfoot (Post 1286193)
Ok so here we are five years further on and another update to my thread.
My symptoms had been fairly constant during that time with the main increase being in my hands.
I am still keeping reasonably fit with walks & bike riding.
However a new issue is developing and I'm a bit concerned where it may lead to.
A couple of weeks ago I noticed a tender spot halfway down my spine. Felt like an area was protruding out & was sore to lean against or lie on. After another week I noticed pain across my lower back, hips, sholders & neck. Thinking I may have caused it through over exertion, I did the usual exercises but it didn’t help.
The pain got bad enough to need pain killers just to get up & dressed in the mornings.
Was ok in bed for a while, just turning over was a mision.
But last night I had to take a pain killer just to get through.
I am only using Paracetamol atm which seems to do the trick.
One every four hrs allows me to do my normal things with managable pain.
I guess I should consult my GP re this but with the covid 19 thing & the lockdown, not all that easy.

Hi Numbfoot,

It sounds to me like you have a back/sport injury of some kind causing bruising of the spine, perhaps a minor herniation of a disc. The best way to treat this is with ice packs 20 minutes at a time. You can buy flat reusable ice/ heat packs on line. Lie on them. You will find instant relief though you may experience weird sensations throughout your body. Its your spine, a nerve centre. Its very easy to re injure the same place so be careful. Heat packs after 72 hours pain free encourages healing.

I suppose the reason you have posted here after many years of inactivity is that you are worried this is a further development of PN. As I say its the spine you may experience nerve like pain that trumps the pains of PN many times over.

You owe it to yourself to get this checked medically. You need to have the cause of the pain diagnosed. Without that you will not have peace of mind. I don't know what restrictions are like in NZ, but I think you'll find its easier to access a GP than you think. GP attendance in UK is low because surgeries are perceived as dangerous places. Aren't restrictions being lifted there? Even if you visit a physio, you need to do something for your own peace of mind.

By the way can't you let us win at rugby just once in my lifetime?

Proud Welshman.

caroline2 05-09-2020 01:23 PM

Maybe I'm way off base BUT I've never been to a doctor for tests and more tests and then what, they push their drugs. It's a vicious cycle. We should know what caused the PN, can be so many issues and for me it was a messed up hip replacement 10 yrs ago. No nerve damage before that.

So much can cause this issue, and medications are a big one.

There is so much good support in the PN group here and I've talked about what helped me a lot:

Inosine
Grape Seed Extract
Topricin for Pain (homeopathic lotion)

You won't get the above info from the doctors.

A friend suffered with IN for years and finally realized it was from Statins. The doctor didn't know that????Please.....

numbfoot 05-09-2020 04:47 PM

Thank you all for the replies.
Here in NZ we get the official anouncement tomorrow, as to whether we go back to level 2 this coming Thursday. That will open up the hairdressers, physios, doctors etc
I do have a couple of damaged areas in my spine from years of abuse as a builder.
They have caused me agro in the past but nothing like this.
I will try to get a visit with my GP asap.


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