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04-13-2009, 03:58 PM
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#41 | |||
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Wisest Elder Ever
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Quote:
Can you find another form of exercise besides the bike? I ask because the recumbent bike at the gym I go to was awful on my feet and left ankle! I think LP refers to lumbar puncture. (this can reveal MS or autoimmune factors, and sometimes they test for B12 in too)
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04-13-2009, 04:14 PM
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#42 | ||
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I would love to dump the bike, but for me it seems to be the best choice.
I am open to other sugestions though. My Lumber Puncture didn't show anything helpful. |
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04-13-2009, 04:41 PM
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#43 | |||
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Wisest Elder Ever
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Many people have been on this board and its predecessor who have used water therapy, swimming and water aerobics
successfully. And one of them was a DOCTOR (a midnight ER physician who also was a bicyclist). He claimed it was a "cure" for him! That was about 5 yrs ago. But some here do use swimming to help.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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04-13-2009, 07:42 PM
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#44 | ||
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Yes I have allways loved swimming & will get back into it when it gets to cold to cycle. But I don't find it works my legs & ankles as hard as the cycling.
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04-13-2009, 07:55 PM
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#45 | |||
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Magnate
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If you have a professional bike fitting service, get it done again if you have not had it done already. I have bad neuropathy. I used to do sprint tri's. My autonomic nervous system was affected and now I can not run at all due to the hypotension. I was completely unable to bike last year, but this year, maybe with the IVIG treatment, I perhaps can get some exercise.
Anyway, your proprioception could be off, and you should have your pedal stroke looked at. Keep in mind you won't feel your feet getting sore or things rubbing holes in your skin....and your hands likewise. Wishing you tailwinds. Cycle  lops
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04-13-2009, 09:16 PM
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#46 | ||
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Thank you cyclelops.
I have a farely new good quality bike with full suspension. It is set up for my build & no-one else uses it. I usually do about 12 killometers on a run, mostly off road, so the body gets a fare veriety of movement. My PN is not severe enough to prevent me from doing everyday things. Just makes them feel a bit awkward. If people ask me how it feels, I can't really explain it. A classic example is doing up the buttons on my shirt cuffs. Instead of doing it by feel I now have to have to put my glasses on to see what my fingers are doing. |
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04-14-2009, 07:42 AM
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#47 | ||
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Magnate
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I agree about pool walking or can you even just walk outside or in a mall? I know for me they told me though I have PN and RSD so am a little different how key range of motion is and strength training so I am wondering if you would benefit too from something like that. In addition hand excersises. Have you ever worked with a PT person?
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04-14-2009, 12:02 PM
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#48 | ||
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Guest
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Just a note: denture cream use has been linked to neuropathy. Long-term use of denture cream results in exposure to large amounts of zinc, which can cause neuropathy. Exactly what "long-term" use amounts to is an open question at this point.
I have created 2 other threads on this subject, you can do a search for them if interested, or PM me. |
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04-14-2009, 02:01 PM
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#49 | |||
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MrsD, since my B12 was last tested at 690, would I still benefit from a supplement?
How I wish I had access to a pool. I have read not only on this site, but from other people, just how much swimming has improved their condition. |
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04-15-2009, 08:35 AM
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#50 | |||
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Senior Member
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I think that 690 is suspect, altho it does fall in the low-normal range.
B12 supplement wouldn't hurt, and you might benefit from it. You cannot overdose on B12- excess is excreted, just like vit C. In the Methyl form (methylcobalamin) as opposed to cyanocobalamin, it is more readily absorbed by the body. I take 1000-2000 mcg (1-2 mg)of methylcobalamin per day, sublingual. It has brought me up to 1100-1200 when last tested. I've been taking it daily for over 7 years. I get Jarrow brand form iherb- it is fairly inexpensive, if you get a 3 or 4 mo supply.
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