^^ Yes, tell me about it. Not sitting is difficult. Especially when you are a guitar and piano teacher.. I haven't worked now for 4 months because I am sick and because I can't sit.
Yes, I can get a nerve block, they use it as a diagnostic tool and also for temporary relief. i know women who have felt worse after a nerve block, so the relief if any, is short lived. It may be lidocaine that is used.
I don't need short fixes, but need to control the pain on a daily basis. Thank you for responding, believe me, I have done alot of research on this subject, i could tell you a lot about it.

Jess,

Have you checked into pelvic floor PT? I had or have the same thing you are speaking of due to lumbar/sacral spinal issues and a broken tailbone. And, oh, yeah, chronic constipation makes this 100 times worse. I thought originally it was a pudendal nerve deal but it wasn't. My problem was the Levator Ani but PT (two different times) helped considerably. I understand what you mean by controlling it on a daily basis. The specialized PT's teach you how to control it.

And I am going to agree with Mrs. D. about the biking. I bought a Recumbent Bike to help with my knee pain. The darn thing is the more I used it the more I couldn't even sit on the thing. I found out later from the Urogyn that that and even Kegel exercises were the very worst things I could do at that point in time. Anyway, the darn thing sits there now and I need to sell it. One last thing though...my Urogyn told me to get the nerves calmed down first before going into PT and I did that...had injections in the spine and in the tailbone blocking the ganglion impar. That helped and THEN I was able to proceed with PT. I haven't had any sit pain since then EXCEPT I will feel a twinge in the tailbone every now and then but that's about it.

So, to make a long story short...yep, the nerve damage causes spasms and you can get those spasms just as you would in your shoulders, etc.

Thank you so much Kathi
I actually have a Physical therapy appointment set for Monday. I made sure she was knowledgeable about pudendal neuropathy, and she has worked with people before. I just had an EMG( PNMLT) test done yesterday which showed pudendal neuralgia, "primarily affecting the branches that supply the pelvic floor." The Dr said that my pelvic floor muscles were tighter and that PT could help. I am going to have her work on loosing the pf muscles and myofascial release. As far as the chronic constipation goes, I have a GI disorder as well, and take meds for that, but I am sure that could have contributed, as well as the pelvic floor muscles being tight, it could have impinged on the nerve.
Thank you for the suggestion. Yes, it is lousy that i have this pain and can't sit. I am taking it easy as far as the exercise goes, and just walking basically. I may try swimming. I am not happy with the diagnosis, but I need to try and be positve.

what do you mean by this?

bicycle seats alot, can damage by compression the sacral nerve roots.

http://www.hobsonseats.com/medical.html

Constant pressure on the perineum may compress nerves there.
With biking it is more common with males, but it can happen
with women too.

http://www.beginnertriathlete.com/cm...articleid=1348

Good luck with it Jess. And post back.

Oh, and don't be surprised if there is slight discomfort afterwards....that's normal. There may or may not be though; sometimes had that happen and at other times not. Just stay with it and I think you will find it to be very beneficial. The PT will explain it all to you. I had or have GI problems too; actually GERD and Gastritis but they are both gone now according to the Gastro. But I still take a probiotic and Lactulose if and when I need it for constipation. And I did aqua therapy last winter. It helped so much that hubby put in a pool this past summer.

This thread caught my eye. It started in Nov. O7. Ended up being diagnosed as a muscle disorder in my pelvis that caused HORRIBLE vaginal pain such as what you are describing. Apparently, the muscles in my pelvis are too short and too tight. I went to a pelvic rehab center and had physical therapy and three months later I was SO much better! I was starting to enjoy life again after months of being in agony, and actually being bedridden on the weekends. Sadly, in Nov. of 08 I was stricken with the neurpathy, (body wide) that I have now. So much for enjoying life without so much pain.