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Old 10-20-2008, 08:30 AM #1
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Default Different types of pain..

Good morning
It has been a strange weekend. I typically have burning nerve pain, but the last 2 days I have had this kind of heightened pain. I explained it as " when you are biking and accidentally hit your crotch on the bike seat " kind of pain.Except all day. Less burning, or no burning but rather this.
Anyone have several different types of neuro pain? why would this happen?
Just thinking out loud.

thanks jess
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Old 10-20-2008, 11:50 AM #2
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so it's more like zaps or zingers of pain there?

I'm sorry i haven't read all of your posts - so I'm not sure if you have a cause of PN or if you've had full testing to be sure there isn't something else causing your symptoms.
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Old 10-20-2008, 01:17 PM #3
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No it is like a hypesensitive pain.
I have been to a neurologist who says nerve pain in the vaginal area, we are pin pointing it as it is looking like pudendal neuralgia. Or pudendal nerve pain.
I was just wondering if people experience different kinds of pains, this kind of pain particularily.
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Old 10-20-2008, 03:27 PM #4
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Default Nerve pain is different when...

nerves are dying, vs. healing....
When they die, there seems to be some consistent 'progression' of that pain/pains up and down a particular area.
When they heal tho, it's a lot more random.....Singular random nerve 'zings' running in this area for 5-seconds to a minute to others twitching here and there again, randomly. When damaged nerves heal or new ones grow - they send out 'signals' to ask the rest of the body [and ideally the nerve system WHAT DO I DO NOW?]
I get these random things and can't help but go OOOOOH! when they get active. They hurt or are very disturbing or irksome! I just keep telling myself that THIS IS GOOD! and try [not easy] to ignore it. Any 'reconnecting' is a good thing! Power of positive thinking? Maybe, sure hope so!
Keeping active to enable these nerves to reconnect to where they are supposed to is soo important! Otherwise they will have no programming to do what they want and should do.
If you want, I can dig out some dated papers on PN nerve regrowth...tho it is dated and not much more has been done in this quarter, unfortunately. We deal with it as best we can and SMILE????? - Hugs - j
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Old 10-20-2008, 04:44 PM #5
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^^ Thank you for the response. I hope they are healing. I have always been an active person even before this happened, I was training for a tri, doing the ms bike ride, biking, running .. etc.. on the days where the pain is lower, i try and get out an walk. It also puts me in a better state of mind.
Appreciate the input.
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Old 10-20-2008, 04:50 PM #6
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Shocked Biking?

Did you say BIKING?

This is a major neuropathy inducing/ nerve damager!
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Old 10-20-2008, 05:14 PM #7
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Yes, biking, but it was not hard-core biking, at all.
I did more running this year as opposed to biking, so I don't believe that to be the cause.
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Old 10-20-2008, 06:59 PM #8
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Default Jess PLEASE!

Pay attention to your body!?!?!?!?!!!
You have a lot of unique and peculiar chemical processes going on inside you...some of it genetic possibly, others simply chemcial changes brought on by responses to past illness or other insults [be they trauma, toxic or who knows what?] to your body. OVERDOING in any way that USED to be normal is NOT any more!
It is a two edged sword we all deal with in that we want very much to be as normal as possible as from 'before', your body screams STOP and your mind says GO! Your body is sending out protests in the only ways it knows how. Put off plans for anything major and start SLOWLY as if a newbie into that activity. You MUST go slow! Rushing things can produce additional damages.
When I was Way younger there was an old axium about athletics...for every day out of training --take three days for each day off to 'get back' to the 'before'. With the nerves, I'd give it a cautious five, and I am dreadfully serious about this. That is why with those who were as equally hurt as I was at first, I caution about the over-eager physical therapists...they've no knowledge of how fragile nerves are with many/most neuropathies-we have to educate them and it is hard to do. Every training step has to be slow, pre-meditated, cautious and super-duper careful. I can't stress this enough. Low impact, pilates-type and water exercises seem to cause the least damages at first. Building up from there? Well don't try to be a super-athelete for at least another year, once you are SURE nothing is progressing worse. The exercises you are doing now might just be a contributor to aggravating issues somehow.
Right now, you must treat your body as the precious miracle that it is! And, to allow it to heal, you've got to give it the rest and right exercises that can help it get better. This is a bitter concept to embrace, but a necessary one. Many [most] of the exercises done to build strength and flexibility are frankly BORING? But they are extraordinarily useful in maintaining basic functions from which to regain prior abilities once the time comes. Tired and pain do come with the territory, but caution helps manage it all. So, don't give up, just be super careful! Hope - don't lose it! 's - j
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Old 10-21-2008, 05:34 AM #9
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Thank you Shelly.
Believe me, ever since I got this pain, I am not doing that kind of exercising. I take walks to get some movement. That has been it for the past 3 months. It is possible that some of the pushing it could have been a contributor to my neuropathy. More than likely though the chronic constipation and the muscle spasms irritating the pudendal nerve.
I know what you are talking about though and thank you for the wise words. I have been athletic all of my life, so I love to do all sorts of sports and was preparing to compete in a tri. When I started having this burning pain, I have ended up on the couch most of the time, so that wasn't going to happen. WHen/if the pain is lower for the the day, like I said, I will walk, that is about it. So it is a change for me, I suppose while I heal. It is tough, as I am used to doing more, but realize i need to help myself heal, so that is what I am doing now.

to you too! Jess
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Old 10-22-2008, 12:04 AM #10
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Quote:
Originally Posted by jess18 View Post
No it is like a hypesensitive pain.
I have been to a neurologist who says nerve pain in the vaginal area, we are pin pointing it as it is looking like pudendal neuralgia. Or pudendal nerve pain.
I was just wondering if people experience different kinds of pains, this kind of pain particularily.
I'm curious, isn't there a kind of nerve block that can be done to alleviate pain in that area? I recall something about that from childbirth information I used to have. I seem to recall it was called a pudendal block...? I googled it and here's a bit of what I found:
http://www.americanpregnancy.org/lab...endalblock.htm

This is a type of local and it may have changed as far as what drugs they use and how they do it. But I figured it was worth mentioning. When one is looking for pain relief any bit of info can be *the* bit of info, ya know?

Not a good pain to have. It would be like other kinds of pain that take you by surprise...such as sudden and severe thumb pain. Sounds silly I know but you don't realise just how much you use and depend on your thumb until you can't use it.
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