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11-06-2008, 08:59 AM | #1 | ||
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Junior Member
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Jesse i have had PN for ten years. The best thing that has helped my burningfeet is to put a 1/2 inch of water in a container. Then add ice a little
bit at a time . The colder you can stand the better.This also helps the swelling. George |
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11-07-2008, 08:29 PM | #2 | ||
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Isnt it interesting how we are all so different...I have the burning feet, legs, hands and arms and thought I'd try putting my feet in cold water (no, not icy or anything like that) and experienced absolute agony with terrible burning when I removed them. For me (go figure and makes absolutely no sense) a nice HOT bath helps my burning. Have no idea why. Maybe the hot water cancels out the burning?! Just goes to show what works for one may not work for another.
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11-07-2008, 10:16 PM | #3 | |||
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Quote:
Billye
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11-09-2008, 03:22 PM | #4 | ||
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I take lyrica and it has been very helpful for me. I take 225 mg a day and i find, divided into three doses. i have found my pain decreased. I am combining it with elavil, just 12.5 mg a day, it's been almost always enough for me.
The only side effect is that i was sleepy at the first two weeks, and veeeery sleepy... but it only lasted two weeks aproximately. No weight gain at all for me. |
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11-10-2008, 09:25 AM | #5 | |||
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I take Lyrica (switched from Neurontin) and Tramadol,
and have little to no s/e except for constipation (take FiberSure) and some slight memory lapses (where'd I put those car keys?).
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11-10-2008, 05:47 PM | #6 | |||
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Thanks for replying.
I suppose what would be helpful to me, and I know it is subjective, but what are your pain levels laying down? Standing? Sitting? Or are they all the same with the meds? Sincce I have pudendal neuralgia, the burning pain is different. While taking 2400mg of neurontin and 25mg of Elavil, my pain levels are about a 2 while lying down, standing, a 2-3 while walking, and higher when sitting 6-7. That is why I am unsure if i should even go on the Lyrica, as my levels are low ( except sitting, which I avoid mostly) and know that it may not get to 0 with meds ... |
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11-11-2008, 09:43 AM | #7 | |||
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Senior Member
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I don't think it ever gets to '0', with meds.
I think that 1-2 is the best we can hope for, with occasional periods of distraction that seem to be an '0', but in reality are just that we are so absorbed in whatever else we are doing, that the time goes by, & we don't realize that we've been 'pain free' for a short time. We really aren't, but the mind seems to play many tricks with the ability to block-out certain pain, if it is distracted enough. Just an observation, and personal comment.
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"Thanks for this!" says: | ZEBHURTZ (12-15-2008) |
11-15-2008, 09:58 AM | #8 | ||
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Junior Member
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I've been on Lyrica for about 18 months, no side effects except not being able to find Z on my keyboard
Started out on 150mg/day but it had no effect until I was upped to 300mg. Was up to 600mg day for most of the 18 months but now it seems my idiopathic neuropathy is starting to fade away. Have now cut back to 350mg and it's still working but I can tell it's still to early to cut it off completely. |
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12-14-2008, 06:12 PM | #9 | ||
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I take 150mg Lyrica 3x daily now with 10mg Opana ER 3x daily and 5mg IR as needed for BK pain. So far so good. I do notice though with Opana if I try to skip a dose because I don't hurt, I immediately feel withdrawals. I become tired, weak, diarrhea. Also, If I don't take the Lyrica I feel pain... It's a cocktail of medication the are co-dependent of one another each other for fantastic pain relief. Good luck. |
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12-15-2008, 02:44 PM | #10 | |||
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Junior Member
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hi jess
I'm the new kid on the block but have had pn for 30+ yrs.. at one time I was taking 4000mg neurontin and just today my pcp moved me up to 400mg lyrica(from 300mg) the lyrica took a long time (45+days) to kick in but am very satisfied with the results and am glad I stuck it out and waited for it to begin working. weight gain was insignificant when compared to pain reduction. a semi-complete list of my meds is on the thread "new and ignerent" although today I also stopped the percocet and am trying avinza 30mg and also tylenol #4 (hate the tylenol, is to hard on my liver) as I am building a tolerance to the opiates. hope you find what works for you |
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