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Old 11-06-2006, 11:00 PM #1
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BEGLET BEGLET is offline
In Memorium
 
Join Date: Sep 2006
Location: So Cali
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15 yr Member
BEGLET BEGLET is offline
In Memorium
BEGLET's Avatar
 
Join Date: Sep 2006
Location: So Cali
Posts: 661
15 yr Member
Default Help in Lieu of Anti-b's - Mrs D or ????

Last week I had surgery on my mouth - fell out of the shower and landed on my head - broke teeth - even cracked my jaw - had to have extractions, crowns, etc.... and had to be done in hospital as I'm allergic to novacaine and lidocaine lasts about 10 minutes for me....

Anyway, I had to have IV anti-b's 'cause of cardio-myopathy we hope is from autonomic PN (the docs keep bringing up amyloid and I will be having definitive heart test for it in near future) - and it appears I may have C-Difficile toxin... I had this when I first got PN from 3 days of Cipro - and was sick for 6 months treated with flagyl and vancomycin - (only drugs the docs said would work) - during that time my sensory nerves went from mild damage to complete nerve death and havent been able to eat any solid food since either - the autonomic symtoms got dramatically worse.... will be tested probably tomorrow and have results the next - and I will not take flaygl (after the last time I found out it was neuro-toxin and probably really helped finish off the nerves) - oral vancomycin is the other drug of choice.. (I took both together last time)....

Has anyone ever had this? And if so, know of any alternative treatment options? I know from experience how sick this can make someone - and it has to be treated - ideas????? Help??????????

Appreciate any feeback!!!!!!! Will be talking to doc tomorrow.....

Thanks.....
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