[LizaJane]

Hi All,

It's been a while since I've posted here, as my problems have seen incredibly complicated, and extended beyond pn. chronic sinus problems, back issues, too many things.

Well, I saw Dr Latov a couple of months ago, and he said my cerebellum was affected and ordered genetic tests for ataxia. These were mostly negative. Turns out that athenadiagnostics will pick up mutations, ( and I have one), but not know the significance of them. Dr L decided I have idiopathic neuropathy, with cerebellar involvement.

I saw my regular neuro, and he seemed to agree that there's cerebellar stuff, though very very mild.

I have new integrative ENT, and he wanted my infectious labs repeated, at a California lab, Igenics.

Then, this week I've gotten the feeling of a razor in my throat when I swallow, which I had in June and last February or March--each time with lots of secretions. Each time treated with antibiotics, and I gradually got better---though it took THREE MONTHS.

So, I saw the ENT while I had the razor in my throat feeling, and he says I have aphthous ulcers over my larynx, but there's not much to do for it....

because the Lyme Tests came back positive, according to CDC criteria.

He thinks this one diagnosis explains just about everything I've been experiencing, and tomorrow I see a Lyme specialist.

I don't know anything about Lyme, and right now I feel too sick to learn, but as I get better I'll be reading more.

It's late lyme, as I've had symptoms almost 20 years, and it's in the cns, which explains the cerebelar stuff.

That is, if the lab is right and I do have it. The test that was positive was the IgM Western Blot.

More to learn....after 15 years of idiopathic.