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Old 12-13-2008, 01:08 PM #1
sailprice sailprice is offline
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sailprice sailprice is offline
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Default

Thanks for all the good information.

I posed vitamin/supplements information to my doctor who apparently does not believe in their value. He said I would be peeing my money away since all I need are available in my diet.

He also said that there is no treatment for my neuropathy since we don't know the cause. And said the progression would be slow since it has taken 10 years to get to this point which he determined in the testing process.

I do plan to try the vitamin/supplement suggestions. My B12 level is 627.

Thanks again.
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Old 12-13-2008, 01:57 PM #2
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mrsD mrsD is offline
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mrsD mrsD is offline
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Lightbulb another doctor's opinion...

I suggest you go to Dr. Jay Cohen MD's website:

http://www.medicationsense.com/

I have this book, and can attest to his expertise on this subject.

Your doctor is mistaken, and you need either a new one,
or to research this yourself. Dr. Cohen supplies MEDICAL support research papers for his opinions.

The book is only about $10 on Amazon.

Many of us here on PN have improved with careful choice of specific nutrients, to help stop progression and to promote healing. For example, statins poison your mitochondria...like other drugs including those used by HIV patients. They have found over a DECADE ago, that acetyl carnitine helps reverse this damage and protect. The same goes for chemo patients.
You can do this too.

Only doctors who are uninformed and stuck in the past, believe that expensive urine comment.
In reality genetic research is showing that people vary considerably in how their bodies biochemically operate. Some need support of B1, others more B12, others more Vit C, there is a proven dependency that people are born with for B6, a genetic error in about 50% of alcoholics that results in low B6 and zinc called pyroluria. I could go on and on.... but you see, we are NOT all the same biochemically.

I am beginning a new thread on Vitamin forum on alternative cholesterol maintenance.
Soon I will have the supplements there. Right now I am just posting links that people need to
read to understand the "problem". For example, Crestor has been lowering YOUR CoQ-10 which is a serious thing.

Here is just one of the papers showing acetyl carnitine protective of cell death in neuropathies:
http://www.annieappleseedproject.org/aconappane.html
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Last edited by mrsD; 12-13-2008 at 02:27 PM.
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Old 12-13-2008, 04:40 PM #3
dahlek dahlek is offline
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dahlek dahlek is offline
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Default I have to agree w/Mrd D!

That many, often most, docs don't have a CLUE about supplements? Some may willy-nilly suggest you take 'this' or 'that' but not really with a grasp of all that neuropathies and all that mite cause them and all the problems they could cause entail.
Think of it this way? Well, lots of supplements you will be simply having go thru you? But, if you've asorbtion issues or the like there is no real way to tell, [besides blood tests] that you are getting enough of what you need.
B-1, B-12 and C excesses go thru you. Others can hang around, such as B-6.
There is a LOT to learn in this quarter and it can be confusing? But Mrs D and others will surely help you thru the maze. And, maze it is!
Here is the Vitamins..etc part of NT that can help you....click on the blue.
http://neurotalk.psychcentral.com/forum49.html
Hope this too helps, keep at the good stuffs? - j
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Old 12-16-2008, 05:01 PM #4
henryb henryb is offline
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Default lapoic acid

Quote:
Originally Posted by sailprice View Post
Thanks for all the good information.

I posed vitamin/supplements information to my doctor who apparently does not believe in their value. He said I would be peeing my money away since all I need are available in my diet.

He also said that there is no treatment for my neuropathy since we don't know the cause. And said the progression would be slow since it has taken 10 years to get to this point which he determined in the testing process.

I do plan to try the vitamin/supplement suggestions. My B12 level is 627.

Thanks again.
when I asked my neuro about the supplements I was taking ,He said to stay with ala ,but had no comment on the others. I have since switched to r-lapoic acid which is better than ala.
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