Hi all,
i was on the old BT and miss it's arachnoiditis area along with it's chronic pain section.

my ? is has anyone been on or tried sativex by lily? it is being used for neuropathy pain in canada and in phase three trials in usa. i believe it's also in trials in the UK. i am curious if the good news on it is really as good as it seems. Anyone on it or heard anything?- thanks whitewolfe

nothing yet. You have to understand that folks & Docs in the PN category aren't as cutting edge as other areas. I mean, 90+% of PN treatments are all OFF LABEL. Since the meds ARE approved for other things, legitimacy in treatments or meds is on the far horizon.

Between govt regs and the 'off-label-syndromes' there's too long a way to go. Should I find any good stuff in the research stuff, I'll let you know ASAP! Good thoughts! - j

Sativex is another form of cannabis, and it's not the form being used primarily in the US. I'm not sure that it's any better than what's already available, but is a competitor. Seems to me, from what I hear, that the pills are useful for nausea, but that cancer patients prefer smoking the stuff. I don't think it's been found all that useful in chronic pain.

This is an excellent research resource. This link will take you to the pain page, and from there you can look for research regarding other issues.

http://www.druglibrary.org/crl/default.htm

rose

thanks to all who said hey and gave your info. I have been tracking this drug for awhile now. i know it is approved and used in Canada but under trials. in the usa it was fast tracked to phase three (last phase) in processing. hopefully it will be here and helpful soon! I am very curious to finf someone who has first hand knowledge if this new drug helps with neuropathic pain. thanks to all -hope everyone is painfree today and more!-G

You're lucky if any doc will take the time to get a good diagnosis, let alone one that's on top of any new, or old treatments in a different package.

Don't know about you or anyone else, but, there are days that either a nerve block or de-nervation procedure sure sounds good. These both have been in and out of favor for decades.

Read Billye's post on Neuro's and Pain - I keep telling [and telling...and telling] myself I HAVE POSITIVE PAIN! But, there's only soo much mind over matter one can do.[?]

Keep telling myself that the fact I can feel has to be GOOD, yet, a 10 minute break now and then wouldn't hurt. I do have to say tho, when I broke one foot and sprained the other this winter, while in the ER room the PN pain did take a far-back back seat! Keeping it all in perspective I guess.

May everyone have an 'ease-up' this week -even a little bit- and good thoughts to all! - j