That would be a clear title for my introduction
I am Lilian, living in Holland with son and some animals and just got a diagnosis small fiber neuropathy. I am waiting for the results of the very last inquiries, for perhaps giving me a cause for my sfn, but the doctor honoustly said to me today, that she hasn't have much confidence that we will find a cause. So in about six weeks it will be an idiopathic sfn I guess.
Last few weeks I searched the internet for documentation about sfn, which was a complete disaster in Dutch; just sfn as complication of Sarcoïdosis is listed and one or two persons somewhere tell something about it on a discussionboard, but furtheron there is absolutely nothing to find about it. Not even a list of symptoms that is usefull to show to interested friends
So I had to look for it in English... which was heavy because my English is not very well and ofcourse medical text is even more difficult to read. But an online dictionary is helping me also with writing this text... So excuse me for making mistakes, the good thing is that your Dutch must be much worser than my English!

Here in Holland sfn is very unknown, also with doctors unfortunately. Accidentally my hospital is 'the' specialized hospital in Holland for sfn, it's the Academic Hospital in Maastricht, so for Holland I am at the right place. Because it's an academic hospital they do studies, also for sfn, so one day I may be helpfull to this. Till that time it's waiting for a treatment and reading about it in English I am afraid. One good thing is that I practice my English very well

welcome to Neuro Talk...good job on the English..I am impressed! Hope you don't get dizzy spinning like that!

is not known everywhere. For me it took more then a year to find the right doctor to get any DX. at the beginning - all of them told me it is in my head.... (and some of them - still think the same)

Anyhow - welcome... here you will find very good friends with a lot of knowledge.

Thank you
In my case it took almost a year for even a thing had been proved, till then all blood- and futher inquiries were ok. I'm glad now that finally something has proved, so I can show to people that I am not crazy (well, it could be but that is not the cause of my probs). I still don't have a real diagnosis, but in about six weeks I'll have, that's always better than having more and more pain, perhaps even need a wheelchair and still not knowing why you need that wheelchair. That would be a nightmare for me I think.

Uhm... DX means diagnosis??

yep! DX means diagnosis.

--it's also posted in the Useful Websites:

http://www.thecni.org/reviews/13-2-p07-treihaft.htm

This article discusses small-fiber neuropathy, and why it is often hard to diagnose, as most standard neurological tests do not measure the functioning of the msall, unmyelianted fibers that subsume the sensation of pain and temperature. Certainly, standard nerve conduction studies/EMG's can only measure functioning of larger, myelinated nerves.