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Old 01-19-2009, 03:21 AM #11
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Hope15 Hope15 is offline
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Join Date: Jan 2009
Location: San Francisco Bay Area
Posts: 236
15 yr Member
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Hi dahlek. My thyroid was tested in the blood work that the neurologist first did initially. I also had additional thyroid tests done by the doctor that I see for my blood pressure. I was told everything was ok. I am getting a copy of my blood work next week. I am also getting a second opinion, and hope to be very careful and proactive with this consultation. Thank you very much for the encouragement. I so want to have hope that there is a chance that this condition might improve someday. I hope to educate myself as much as possible with this dreaded disease for sure. God bless and hugs right back at you!





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Originally Posted by dahlek View Post
One of the things I have learned, is to ask for, and get copies of my bloodwork! Some of my own blood #'s started increasing when I had started other meds for other issues..... When the #'s reached the ***** asterisk point, I was gently teasing and reminding my docs about my concerns that these numbers had been rising for the last year! I then asked: Do you ONLY pay attention to the Asterisks???? ****** One doc just smiled and agreed, but, I think he respected me, after looking at his prior notes and saw that I had brought up this concern before. The other docs [many] were just silent and changed the subject. Sigh.
Full hemo testing and metabolic testing can tell YOU a lot! Such as: you are one decimal point below the dreaded "*" level that aren't calling attention to the docs? But YOU will know. For the metabolic aspects? Many supplements can and DO help relieve some aspects of the fasculations. And, maybe ease or improve other subtle areas of concern.
Have you had a full thyroid panel done? This is a very common issue with women going thru meno. The thyroid can often act up and can be helped immensely with meds. Simple, easy and resolvable. Not easily diagnosed tho because many docs don't DO the right testings....
I agree wholeheartedly with others who have posted about other tests ... what you can hope for and what a doc will DO are two different things, tho. Keep asking! I know that some PN's are thyroid issue induced. I kept asking my neuro about this? And doc said absolutely NOT! But my Ocon referred me to an Endocrinologist who DID test me for immune-related thyroid issues and ... Guess WHAT? Added it to the LIST of problems-tho not the primary issue? It didn't help any for sure. Treatment for immune-type thyroid [hypo/Hashimoto's] is no different than basic treatments, but.. if untreated it can make you even more miserable than you are now. My thyroid med dose was upped, and all is well in that quarter.
Key here is to KEEP ASKING! Ask what all is going on-about everything, & that you want to understand it all to deal with it better? That docs can work with you instead of for you.
I'm not saying that thyroid is your key problem, not by any means! But, soo much from outside the nerves themselves can cause nerve problems. You have to be your own detective, so to speak? Hope this helps.
A or two to ease your pain in the interim! I know it's horrid! - j
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