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08-20-2012, 06:28 AM
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Hello,
As I am also from Holland, and recently diagnosed with sfn, I would like to know to which specialist in Maastricht you have been. I do have a lot of other questions and would like to get in contact with you. I have these strange sensory and feelings feelings already for years. It took me 5 neurologists to be finally diagnosed with sfn by taking a skinbiopt. The next step will be to go to Maastricht, a specialized medical center for this disease. I am reading a lot now on sfn, and come across new treatments like low level lasertherapy. Anyone any experience? Also supplements like alpha-lipon acid. Els Quote:
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Holland SFN
than my 25mg is just a candy.
) Two of that educating specialists are specialized in SFN and last visit I was offered to speak to one of them the next time. That's quite special; in 'normal' cases/with average diseases you have to stay with your studying doctor and that's it.
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