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01-31-2009, 06:21 PM
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#11 | |||
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Of couse, as a rule, none of us have just neuropathy, there is nearly always an underlying cause.
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Deb We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right! |
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01-31-2009, 06:51 PM
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#12 | |||
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could be something like the double crush syndrome that Glenn talks about, perhaps the long term lower levels of oxygen saturation in the blood due to sleep apnia exacerbates an already existing but milder PN by bringing on greater damage.
all i know is im sick of going to doctors. pun intended |
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01-31-2009, 07:24 PM
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#13 | |||
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Magnate
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I am just going to squish this new finding of mine in this thread, as it kind of goes with the Sjogren's thing. I had a lab come back with an abnormal CD4/CD8 ratio....CD4 too high, (AKA) T helper cells are too high. I don't know for sure what this means yet.....there are a few diseases coming to mind. However, my point is, it is HARD to get to the bottom of these symptoms. My seroneg. Sjogren's may be something totally different, which I am not going to speculate on the board until I know more. So push on to get the tests, push on with your research.
If you had dry eyes and mouth before CPAP, and it was not related to medication, get tested for Sjogren's. You will likely have the blood tests, and if those are negative, you can have the lip biopsy. If you have a positive lip biopsy, it can mean several things. Sjogrens (seroneg), psoriasis, sarcoidosis, lymphomas etc.....or simply sialadenitis. Then if you have one of these autoimmune diseases, you have decisions to make. |
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01-31-2009, 09:55 PM
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#14 | |||
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 Yes Cyclelops, I had the dry eyes and mouth before CPAP and medicines were not involved. I did have the blood work done yesterday, so we will see soon what comes up. Your blood work results are beyond my knowledge!!!
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Deb We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right! |
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02-01-2009, 02:24 PM
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#15 | |||
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Magnate
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You have given a whole new meaning to sicca syndrome. I, too, am sicca doctors.
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02-01-2009, 04:58 PM
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#16 | |||
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 We get tossed back and forth like badmitton birdies.  I like my PCP, my neuro, and my sleep doctor, I just leave them very discouraged often times. My neuropathy is not progressing anymore, that's wonderful, and I give all the credit to B12. I have been having this pain in my left hip, sometimes almost putting me on the floor..not sure if it's the neuropathy or arthritis. My biggest problem now are my headaches. They seem to be getting worse all the time. Friday, the pain was as close to a migraine as it could possibly get, I couldn't stand light, I couldn't eat, I just wanted to lay still in the dark. If the neuro is right, and the headaches are muscular, then I hope in another week or 2, the Wellbutrin will kick in and change my anxiety and stress levels. Thankfully, I am not suffering any side effects from it. Usually the side effects of meds are greatly magnified, probably because of my malabsorption problems. I do not want to have Sicca, yet if I do, I want to catch it as early as possible.
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Deb We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right! |
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02-02-2009, 05:14 AM
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#17 | |||
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Wisest Elder Ever
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If this pertains to anyone here.
But I am going to bring it up anyway. I just finished a long CE lesson on Hep C and this was contained in it. 1) you can have Hep C and not know it. Some cases are very mild, and people recover from it and think it was a "flu" or other viral illness.(the virus remains however). 2) Hep C causes dry eye syndrome: http://www.osnsupersite.com/view.aspx?rid=24631 http://www.hepcaustralia.com.au/inde...nd-hepatitis-c So if anyone here has sicca symptoms and has not been tested for Hep C...I'd suggest you have that done.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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03-15-2009, 06:01 AM
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#18 | ||
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New Member
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I'm new to this site and all I can gather is that there is not much that can be done for SICCA/Sjogren's.
I started with dry mouth about 5 years back, hardly noticed at first, then day time occasionally, then night, now day in day out without cease. Polythylene Oxide Lozenges give some relief - just suck them for ever, even overnight; they make the mouth slimy. Mid 2008 got up one day with eyes out of a horror movie, have seen doctors, ophthalmic people and a specialist, but basically they put it all down to SICCA and look lost.... and pessimistic. My General Practiitioner has tried to be reassuiring, saying he now understands why I have seemed to complain so much about my rheumatoid arthritis despite my ridiculously healthy lifetsyle. Had a test by a German narturopath. who measured my secretory IgA, produced by mucus memranes and essential to the immune system at 279 compared with a normal range of 510-2040, but I've no idea what that really means, except it is clearly low. I know this leads on to lung and kidney problems. in other words, its bad news. worse news is that as far as research is concerned it seems off the radar. Does anyone know wher this leads to? Incidentally Biotene for me does very little, gives a few minutes relief but that's it. . Quote:
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03-15-2009, 06:44 AM
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#19 | |||
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Well, when my tests came back, the neuro says negative for Sicca. The dryness continues, although it isn't as bad when the weather changes. Then the allergy season kicks in to full force, trade one problem for another. I keep Systane Ultra on hand. Some days my eyes are like a beach, sand everywhere, then other days they seem ok. My dry mouth is worse at night, and it doesn't seem to matter what I try with the CPAP.
Just another thing I have to learn to live with. Welcome to the forum Mike.
__________________
Deb We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right! |
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03-16-2009, 02:17 AM
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#20 | |||
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yay, it's good news that you tested negative, who wants to pick up another 'disease', kwim?
Actually I find sugarfree chewing gum as helpful as anything else for my mouth dryness (I have sjogrens) - while for my eyes I use artificial tears (without preservative as I am allergic to it). Various meds can also contribute towards dry mouth, so it may be illumanating to check any medication that you are on. cheers raglet |
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