Originally Posted by mardonna (Post 928080)

I am a 67 yo man. I developed pn about 2 yrs ago. I also get extremely tired in my pelvic region and movesup my back. I had bilateral laminectomys on L1-4. but no relief. my CK creatine kinese is 715, it dropped some and then went back up. The research I have done says High CK comes from muscle damage, heart damage or from the brain. I have have all the heart work ups. I have been to two neurologists including one at Oregon Health Sciences med center. my CK e]was normal prior to all this. Anyone else with pn and High ck?

Originally Posted by cyclelops (Post 455169)

I have autonomic neuropathy and it takes a while to learn to live with it. Mine is not diabetic. I don't think you can compare morbidity and mortality to diabetic autonomic neuropathy, because diabetes causes overlay of other problems that you may not experience in non-diabetic AN. There is no real marker for autoimmune AN, which is what they feel mine is. Mine is due to or part of connective tissue disease which is 'seronegative' Sjogrens or some yet unnamed connective tissue disease. My AN has remained fairly constant now for several years, actually, has improved with IVIG.