I'd like to hear from people who have had this for 5 years or longer, especially those whose initial symptoms were tingling/burning/twitching and other sensory issues.
Did it take over the whole body? Did it stay the same or did it progress to motor symptoms?

I am 2 years into this and there is a clear progression so far. At first tingling/burning in feet/calves/rarely hands and now the burning is all over my legs and hands with the twitching having stayed the same.
I am 28 and thinking about where I'll be in 10 years makes me uncomfortable to say the least.