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Old 02-01-2009, 08:07 PM #1
dustofsnow dustofsnow is offline
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Default Physical therapy?
Newbie to the site here. Am in 20s with lyme-induced PN that has finally spread from soles of feet all the way up to hands. Can no longer take pain meds b/c they make me vomit. Am in terrible terrible terrible terrible pain all the time. Life is starting to fall apart. Physical therapy ever work? TENS? Biofeedback? Massage? Local injections? Just wondering if you've ever had success with these things or other none narcotic options. Take ultram and lyrica with some success but not enough.
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Old 02-02-2009, 11:18 AM #2
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Lightbulb
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Originally Posted by dustofsnow View Post
Newbie to the site here. Am in 20s with lyme-induced PN that has finally spread from soles of feet all the way up to hands. Can no longer take pain meds b/c they make me vomit. Am in terrible terrible terrible terrible pain all the time. Life is starting to fall apart. Physical therapy ever work? TENS? Biofeedback? Massage? Local injections? Just wondering if you've ever had success with these things or other none narcotic options. Take ultram and lyrica with some success but not enough.
Are you being treated with antibiotics for the Lyme?
Were you treated..and for a long time?

Many of the antibiotics are heavy depleters of nutrients, and this side effect may be a cause or contributor to neuropathies.
If you post your RX meds I'll look that up for you.
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Old 02-02-2009, 12:51 PM #3
dustofsnow dustofsnow is offline
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Originally Posted by mrsD View Post
Are you being treated with antibiotics for the Lyme?
Were you treated..and for a long time?

Many of the antibiotics are heavy depleters of nutrients, and this side effect may be a cause or contributor to neuropathies.
If you post your RX meds I'll look that up for you.
Yes I should clarify. I am 27 now. I got Lyme when I was 10, and was treated FINALLY when I was 21 with 6 months of Rocephin intravenously. The PN began when I was 19. I no longer have Lyme disease, but the PN continues to progress. I wonder why. I wonder if the fact that I have high blood sugar (not diabetic though) for the past four years contributes. It just got into my hands a few weeks ago. I can't believe how much pain I'm in. Am I the only young person like this? Thank you for your help!
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Old 02-02-2009, 02:56 PM #4
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Lightbulb that blood sugar
certainly is a serious consideration. If you get that under control your PN may be better.

Even minor elevations take a toll, over time.
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Old 02-02-2009, 03:03 PM #5
dustofsnow dustofsnow is offline
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Default better?
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certainly is a serious consideration. If you get that under control your PN may be better.

Even minor elevations take a toll, over time.
So--when you say "your PN may be better" do you mean stop progressing, or do you mean actually get a little better? This is something my doctor is really vague about. (she actually is vague about everything PN--that is why I'm asking for a referral to a pain clinic when I see her today) Perhaps it is a bit much to be asking you this, but perhaps you know!
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Old 02-03-2009, 03:15 AM #6
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Lightbulb both...
but it really depends on you.

Good control of sugar, and a good diet does wonders.
You may need some supplement support, like lipoic acid, B12, and benfotiamine. These 3 are the basic best ones for diabetic
neuropathies.

You are young... if you have PN now that is a bad sign for the future, IMO.

A good diet to read up on is Dr. Sear's Zone. It has shown huge benefits in type II diabetics.
He has several books now, your library probably has them.
This diet is easy to follow as well. It is not "extreme" like some.
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Old 02-03-2009, 11:00 AM #7
Leslie Leslie is offline
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Originally Posted by dustofsnow View Post
So--when you say "your PN may be better" do you mean stop progressing, or do you mean actually get a little better? This is something my doctor is really vague about. (she actually is vague about everything PN--that is why I'm asking for a referral to a pain clinic when I see her today) Perhaps it is a bit much to be asking you this, but perhaps you know!
Dear Dust -

I am pre-diabetic and I can tell you first hand that when I load my day with soda and sugary snacks I am in agony for the next several days. When I watch the carbs I have very good days. Like today, I only have the slightest of pain in my hands and feet. I would say my pain level is a 1 or 2 and that is becasue I have kept to a low carb diet this past week.

I do take Lyrica, amitryptlyne and tramadol for breakthrough pain. So far I'm not having to take much of the tramadol at all.
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