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Old 02-26-2009, 05:48 PM #16
dahlek dahlek is offline
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Join Date: Aug 2006
Location: metro DC suburbs
Posts: 2,576
15 yr Member
dahlek dahlek is offline
Magnate
 
Join Date: Aug 2006
Location: metro DC suburbs
Posts: 2,576
15 yr Member
Default Mystery diagnosis IS all about the Diagnosis!

not in diagnosing anyone! That process in the meat grinder is US and up to US!
One point the show does make is that somehow....the less common medical issues aren't in any general practicioner's repertoire. I liken it to a piano bar player doing only Billy Joel but is incapable of doing Elton John or anything more complex or contemporary.
I was lucky in that I suspected my neuro #1 didn't have a clue nor cared. I am grateful I found neuro #2 and then A big cheese neuro [#3] to get all the tests needed done and treatments on the road. For so many of the folks featured on the show? Some suffer 20-30 years before someone thinks either outside some boxes or looks at 'other' boxes at all to find the real issues.
Wether it is training deficiencies in the basics of medical indoctrinization or a lack of overall 'educating' at those recertification conferences that they seem to go to [and only play golf-I hate golf! Sorry golf lovers] omits the expansion of minds into other areas...It's just that the 'system' has failed us, and miserably.
Neuro issues diagnostics IS a process of elimination! Then it's try and treat with what is available. Do remember that most PN meds are prescribed 'off-label'! Honestly it's all hit or miss and we are the ones that have to experiment.
WE are whole persons who HURT! And that to me is the best way to present your cases. If any physician questions YOUR questions? Or worse, questions that YOU question THEM? Well- Time to get some 'second opinions' if you can afford it! It can and has saved lives. As many here will attest to that fact.
Hugs and hope to all! 's - j
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