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Old 02-20-2009, 11:30 PM #1
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spkar0517 spkar0517 is offline
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Join Date: Jul 2008
Location: Westchester County NY
Posts: 39
15 yr Member
spkar0517 spkar0517 is offline
Junior Member
spkar0517's Avatar
 
Join Date: Jul 2008
Location: Westchester County NY
Posts: 39
15 yr Member
Default We are Alone - Studies needed

While I appreciate the support and information provided on this forum by other sufferers, I think we are lacking the support of the medical community for our conditions.

I think that we who suffer are being denied the research needed. Every clinical trial I can find is for diabetic neuropathy. Doesnt anyone want to figure out what is causing the debilitating pain for the idiopathic?

I am beginning to become angry. i am looking for help in diagnosing/ curing / dealing with my condition only to find very few experts or even well informed medical professionals to help.

I am willing to partake in clinical trials to find a reason for this issue, but again, most focus on diabetes. I do not have diabetes, but my life has been sent into a whirlwind with pain that has unknown causes and which seems no medical professionals really want to focus on.

Perhaps if we join together, we could get some of the warranted attention needed so that our pain can be deminished and quality of life improved. Again, while we are a great support system for each other, we are not the answer to our illness which deserves investigation. I do not want to be disabled.
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