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Thousands a day..sounds like it is more than "normal". Are you eating alot of MSG? (this additive causes alot of problems for most people) Are you getting enough omega-3 flax oil daily and cutting back on Omega-6's? This is a dietary way of controlling inflammation. When your body is reacting all the time, in that mode, you can't help but feel anxious and off balance. |
Dahlek first I am sorry about your cancer dx. You are in my thoughts. I am also sorry for everyones pain and health conditions. I think I have gone through so many phases of emotions/feelings through my health conditions. I still do but have learned new ways to help cope through these. Some days I do better then others. The past few weeks I have been hit real hard and so my feelings are everywhere but am trying to hold to hope. I also know that in general my mental resistence is down I guess you could say. A few things I am working on is staying in the day and getting through it in the best way possible. Also trying to not allow a breakdown mentally to happen when I see it coming. For ex I have been in a flare up with my legs and my eyes/ear are at the worst they have been from pressure and hard to see/hear often. I have been so upset so I am trying to be proactive getting treatment,reaching out for support,distracting in ways I can. Also trying to be hopeful and not worry so much about the what if's. This is hard because my fears turn into reality.
You make a good point about life being different. I agree and when I was at the pain clinic they tried to teach us to find things you can do or focus on in your current state. As my neuro said learning to live the best life you can with your pain. This was a hard one for me to wrap my mind around. Hang in there and as my mom says when I get upset take deep breaths. Hugs to all |
First off? I have to say....
That the Cancer diagnosis was EASY compared to the PN/CIDP diagnosis! It took four months from finding a 'lump' to surgery and follow up things. It took FOURTEEN months from onset to diagnosis of the PN aspects. Specialty docs know more about cancer and how to deal with it than do Neurologists, plain and simple.
Had I not LEARNED all that I had from ALL the good people here and at other sites about PN and what to learn about the processes and treatments, I never could have coped w/the cancer so easily! The whammy's are like PN, this could come back or get worse. It comes with the territory. YES! without exception are you allowed to be scared stupid at times! What is happening to you is akin to what severe burn patients or war veterans encounter.... But we are HUMAN and being so means that we have the ability to rise over fears and reason out a lot of what is happening. We either cope, compensate or self-destruct. To me, that latter option is not acceptable under any circumstances. Also to me, that is why I adocate PT and getting moving as best as you can as much as you can and as safely as you can... because to lose any mobility is to lose a good portion of access to LIFE! LEARN about all that is going on wrong in/with you and find ways to help things along for the better! Knowledge is power they say...I believe it helps me when I get to things not going right and WANT, just want to panic? Knowing the processes that mite be happening calms me down...I go in my brain conversations: OK I'm doing something NOT OK! Yep, and you know what is happening, think it thru and then think it DOWN [as in small]. IF that doesn't work? Then I'll call the docs' offices and ASK, but only once I know I can't 'beat' this 'whatever' that is going on. And, I have had more than one 'red alert' incident over the years for sure! No one here can actually hold your hand thru this...we are too far apart? But we can and will tell you what we would do/have done in similar situations. Got that? :hug:'s - j |
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Hum.... this happen to me too.
I mean, if Im having a good time, laughing or distracted, I "forget" my pains and simply dont feel them... When Im sad or stressed, oh hell... even my hair follicles hurt (no kidding). I think it has to do something with serotonin too... I mean, I love that neurotransmitter... It is good for mood, for sleep... etc... Hum, will go and read more about serotonin and pain to see if my theory collpases or not :D Hugs for all you ! :hug: |
Oh heck, maybe it is not serotonin but dopamin !!!! :D
Synapse. 2009 Jan 27;63(5):390-402. [Epub ahead of print]Click here to read Links Human evidence of a supra-spinal modulating role of dopamine on pain perception. Potvin S, Grignon S, Marchand S. Department of neurosurgery, Faculty of medicine, University of Sherbrooke; Sherbrooke, Canada. BACKGROUND:: Over the last decades, remarkable progresses have been accomplished regarding the understanding of the neurophysiologic and neuropharmacological bases of pain. A growing preclinical literature supports a role for substance P, endogenous opioids, glutamate, serotonin, and norepinephrine in pain perception. Recently, a series of studies explored the function of dopamine in pain perception, which we review here, while focusing on human studies. METHODS:: The literature was screened using electronic databases. RESULTS:: We found evidence from genetics, brain imaging, neuropsychiatry, and pharmacology of an involvement of dopamine in pain processing. Using positron emission tomography and molecular genetics, studies have been performed in healthy volunteers and patients suffering from chronic pain conditions, showing a key role of dopamine in pain perception. Moreover, abnormal pain perception has been documented in neuropsychiatric disorders, such as Parkinson's disease and schizophrenia, where dopamine has a pathophysiological role. Lastly, pharmacological studies have shown that dopaminergic drugs (antipsychotics, antiparkinsonian drugs, atypical antidepressants, psychostimulants) modify pain perception. DISCUSSION:: Although there is growing evidence supporting a role of dopamine in pain perception, the mechanisms by which dopamine influences pain processing remains to be determined. On the basis of preliminary findings, we put forth the hypothesis that dopamine is involved in endogenous pain modulation systems, and further discuss the implications of this hypothesis for the understanding of the physiopathology of chronic pain disorders associated with dysfunctional endogenous pain modulation systems. Synapse 63:390-402, 2009. (c) 2009 Wiley-Liss, Inc. |
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Thanks, fascinating reading! :) |
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