Hi. I am a 51 yr. old female with a non-length dependent sfn. The burning and pain started almost a year and a half ago down the back of one thigh and continued to spread to almost everywhere. It started after a tick bite and a 24 hr. gastrointestinal episode. I have three neg. lyme tests, including spinal tap - went on 2 months oral and 2 weeks iv. antibiotics. I have had numerous tests, all neg., first skin biopsy showed axonal swelling and branching with normal density, but a recent biopsy shows reduced density at ankle, normal at thigh. i have seen 5 neuros, last one at hopkins who suspects a sensory ganglionopathy. I have a high pain threshold, but this is very challenging! I am on gabapentin. I have just started numerous supplements under the guidance of a nutritionist who works with a neuro.
Just here for support and ideas. Thanks!