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Old 03-16-2009, 09:01 AM #1
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Default 'A Rose' By Any Other Name.......?

SFN? LFN? PN?
Feet? Hands? Arms? Legs?
It is my impression that the treatment and/or meds
is just about all the same.
Unless a Dx of Autonomic PN (usually body-wide) and extreme therapies
such as IVIG are deemed necessary, or from a compression cause - caused by injury, deterioration of bone/joints, or a botched surgery (surgical remedies).
Central nervous system neuropathies are not as common as those
of the Peripheral System, and those can be small fiber (SFN)-
or large fiber (LFN).
A skin punch test can Dx small fiber and is just about
the gold standard test. Treatment is usually either meds, topical,
supplements, PT, and/or diet.

PN caused by diabetes, toxins, (medicines/antibiotics, or exposure to poisons), or any of the over 200 known causes-as well as 'ideopathic' - are treated pretty much similarly- as a chronic condition with no known cure.
These are my impressions, having read about my PN (length dependent- axonal, sensory, polyneuropathy ), for the last 12 years.
Am I out of date?
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Old 03-16-2009, 01:26 PM #2
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Default How right you are!

AND you are not out of date.

But, by 'rose', do you mean the 'stinking rose' type? At times I truly want to wear a garland of garlic to ward off further evils.

- j
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Old 03-16-2009, 01:59 PM #3
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Default

I am no expert ....... and don't even want to be .... but ....

I am very logical. To me for the most part ... yes a rose is in fact a rose. That does seem to hold true for PN and many other things.

In 1981 I noticed a sound in my head. I ended up (after testing) getting the pOOp from the mouth of a well known midwest ear doctor.

"you have tinnitus in both hears" ......... end of story. (a rose)

In 2004 - after testing .... a well respected neuro .......

"you have peripheral neuropathy - want some pills" (another rose)

------------

Many people spend thousands and thousands (their money or some insurance company's money) and get about the same thing .......

"Do you want some pills?".

There is no answers (in my case) to tinnitus or PN ..... both end up a rose by any name.
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Old 03-18-2009, 06:27 PM #4
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Default All the Roses have thorns!!!!!!

They name the roses after famous people, places and things to give them significance....just like the different types of Neuropathy... but they all have one thing in common... when they stick you with their thorns, IT HURTS!

All the types of Neuropathy HURT! I'm sitting here at my desk, working at a very large insurance company, and my feet hurt on top, on bottom, my toes cramp at the end of the day, I'm sleepy by 4pm, and I have to sleep 10 to 12 hours a night to make it through a work day... I take anti-seizure meds, anti-depression meds, a cocktail of vitamins and minerals, and exercise and eat as best I can, just to live a "somewhat" normal life...

People who work with me and see me on the street have no idea I'm in pain on a daily basis. They have no idea I sit here at my desk with shooting pains, cramping toes, and shocks in my feet.
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